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35th Anniversary Celebration & 2018 Rare Impact Awards


NORD’s 35th Anniversary Celebration presenting the 2018 Rare Impact Awards will be held on May 17, 2018, in Washington, D.C. at the Andrew W. Mellon Auditorium. This event will celebrate the efforts to help the 30 million Americans with rare diseases who, by the very nature of their diagnoses, may be overlooked by traditional medicine, research and healthcare policies.

The 2018 event is a special one to not only celebrate the progress gained in the last year but also the progress gained in the past 35 years as NORD will be celebrating its 35th anniversary and the anniversary of the Orphan Drug Act, a monumental piece of legislation in rare disease.

Click here to watch the 2017 event!

Event Information/Registration

Event Details

Thursday, May 17, 2018
6:00 p.m.

Andrew W. Mellon Auditorium
1300 Constitution Avenue, NW
Washington, D.C. 20240

*black tie requested*

For additional event information, please contact
For event sponsorship information, please fill out the form here.


2018 Honorees









Robert Campbell, Jr., M.D.
Lifetime Achievement Award








Richard Pazdur, M.D.
Public Health Leadership Award








Patrick Dunegan
Rare Impact Award

Elisabeth Dykens, 2018 Rare Impact Award Honoree

Elisabeth Dykens, Ph.D.
Rare Impact Award









Maria Kefalas, Ph.D.
Rare Impact Award










The Honorable Frank Pallone, Jr.
Congressman from New Jersey
Rare Impact Award







Ellen Sigal, Ph.D.
Rare Impact Award










The Honorable Marcy Toepel
State Representative from Pennsylvania
Rare Impact Award

2018 Rare Impact Award Honoree, Chris Ulmer
Chris Ulmer
Rare Impact Award




BioMarin Pharmaceutical, Inc.
for Brineura®
Industry Innovation Award










Cook Medical LLC
for Flourish™ Pediatric Esophageal Atresia
Industry Innovation Award


foundation medicine






Foundation Medicine, Inc.
for FoundationOne CDx™
Industry Innovation Award






for Kymriah™
Industry Innovation Award







Spark Therapeutics
for Luxturna™
Industry Innovation Award







Ultragenyx Pharmaceutical, Inc.
Industry Innovation Award


2018 Sponsors

A joyful and festive evening, NORD’s signature tribute event offers a broad range of sponsorship and recognition opportunities. Help us to honor the individuals that are making a rare impact. For those interested in sponsoring this event, please indicate your interest using the form here.

RIA Sponsor Grouping (2)