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Sep. 4, 2020

TOPIC: Featured News, Patients & Members, Patient Stories, Voices of Rare Cancer 2020

#RareCancerDay is September 30! NORD will share facts, information and patient stories throughout the month.

Posted by Valaree DonFrancesco

Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by the NORD Rare Cancer Coalition, which is composed of 27 rare cancer-specific member organizations, Rare Cancer Day is observed on September 30 to highlight the challenges patients face and to unify individuals living with rare cancers for awareness and early diagnosis. Kicking off the Voices of Rare Cancer series is Kathy’s story of living with intrahepatic cholangiocarcinoma and her experience with genomic testing.