Resource Library

RDCA-DAP, Research & Drug Development, Understanding Rare Disease

What is Patient Focused Drug Development (PFDD)?

Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC)

Webinar Recording: Create a Rare Disease Advisory Council in Your State

Recorded: January 13, 2021

Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC)

Webinar Recording: Advocating for a Rare Disease Advisory Council in your State

Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC)

Toolkit: Implementing a Rare Disease Advisory Council in Your State

*Requires form submission to access

Legislative Advocacy, Rare Disease Advisory Councils (RDAC)

Toolkit: Creating an RDAC in Your State

*Requires form submission to access

Membership

The Nonprofit Roadmap: Strategic Planning for Beginners

Rare Disease Day, Tools for Social Media

Social Media Toolkit

Membership, Research & Drug Development

Research Ready Quick Reference Guide

Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC)

Recording: RDAC Stakeholders Meeting

Advocacy, Get Involved, Legislative Advocacy, Rare Disease Advisory Councils (RDAC)

RDAC Stakeholders Meeting 2021

Recorded: November 16, 2021

Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC)

RDAC Overview

Membership

RareLaunch Toolkit (December 2020 Workshop)

Rare Disease Day

Rare Disease Day Zoom Backgrounds

General Resources and Activities, Rare Disease Day

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General Resources and Activities, Rare Disease Day

Word Search