Advocates, Patient & Caregiver, Patient Organizations, COVID-19, PDF, Publication, Education, October 17, 2022 NORD RareInsights® COVID-19 Community Survey Report #2
Advocates, Patient Organizations, Advocacy, Regulatory, Telehealth, Understanding Rare Disease, PDF, Publication, Education, NORD RareInsights® Ensuring Access to Telehealth for Rare Diseases
Advocates, Patient Organizations, Researchers, Advocacy, Research & Drug Development, PDF, Publication, Education, Policy, Orphan Drugs in the United States: Rare Disease Innovation and Cost Trends Through 2019
Advocates, Patient Organizations, Researchers, Advocacy, Regulatory, Research & Drug Development, PDF, Publication, Education, Policy, Orphan Drugs in the United States: An Examination of Patents and Orphan Drug Exclusivity
Advocates, Medical Professionals, Researchers, Regulatory, Research & Drug Development, PDF, Publication, Education, FDA’S Accelerated Approval Pathway: A Rare Disease Perspective
Advocates, Researchers, Legislative Advocacy, Understanding Rare Disease, PDF, Publication, Research, September 28, 2022 Barriers to Rare Disease Diagnosis, Care and Treatment in the U.S.: A 30-Year Comparative Analysis
Advocates, Researchers, Students & Volunteers, Legislative Advocacy, Research & Drug Development, Infographic, Publication, Research, Barriers to Rare Disease Diagnosis, Care and Treatment in the U.S.: A 30-Year Comparative Analysis Fact Sheet