Rare Disease Resource Library

Patient & Caregiver, Advocacy, Understanding Rare Disease, PDF, Education,

July 28, 2026

Clinical Trials Frequently Asked Questions

Patient & Caregiver, Advocacy, Understanding Rare Disease, PDF, Education,

April 28, 2026

Glossary of Clinical Research Terms

Medical Professionals, Patients & Caregivers, Genetic Testing, Educational Video, Education,

October 16, 2024

¿Por qué debería hacerme una prueba genética si ya tengo un diagnóstico?

Patient Organizations, Patients & Caregivers, Genetic Testing, Understanding Rare Disease, Educational Video, Education,

Why Should I Get Genetic Testing If I Already Have a Diagnosis?

Medical Professionals, Patient & Caregiver, Genetic Testing, Educational Video, Education,

November 3, 2023

Genetic Testing for Rare and Undiagnosed Diseases

Medical Professionals, Patient & Caregiver, Genetic Testing, Infographic, Education,

November 2, 2023

¿Qué son las Pruebas Genéticas?

Medical Professionals, Patient & Caregiver, Genetic Testing, Infographic, Education,

Genetic Testing for Rare Diseases

Get Involved, Rare Cancer, Understanding Rare Disease, Webinar, Education, Membership,

October 6, 2023

Rare Cancer Day Webinar 2023

RDCA-DAP, Educational Video, Education,

January 24, 2023

NORD Data Literacy

Advocates, Patient & Caregiver, Patient Organizations, Researchers, Students & Volunteers, Advocacy, RDCA-DAP, Research & Drug Development, Infographic, PDF, Education, Policy,

October 20, 2022

The Five Steps in Drug Development (Spanish version)