Search Results for: reports_by_letter.html

Policy Statement

NORD letter to IL Department of Healthcare and Family Services regarding Medicaid DUR for nusinersen and other orphan drugs

Policy Statement

Coalition letter in support of the proposed substitute for Michigan House Bill No. 4472

Policy Statement

Coalition letter to the Centers for Medicare & Medicaid Services (CMS) regarding the MassHealth Section 1115 Demonstration Amendment Request

Policy Statement

Coalition letter to Congress in support of the Ensuring Children’s Access to Specialty Care Act of 2017

Policy Statement

Coalition letter urging Congress to include support for loan repayment for pediatric subspecialists as part of the effort to reauthorize the Title VII health professions workforce programs

Policy Statement

Coalition letter urging the House to adopt the Senate Appropriations Committee’s funding levels for outreach and enrollment in marketplace coverage under the Affordable Care Act

Policy Statement

Coalition letter urging Congress to reject any proposal to increase Medicare Part D copayments for beneficiaries receiving the low-income subsidy (LIS)

Policy Statement

Coalition letter to the House Energy and Commerce Committee in opposition to S.204, the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017, and H.R. 878, the Right to Try Act of 2017

Policy Statement

Sign-on letter from 140 patient organizations urging Congress to keep the Orphan Drug Tax Credit in place

Policy Statement

Coalition letter urging Secretary Price to retain the six protected classes under Medicare Part D

Policy Statement

NORD letter voicing concerns over California Assembly Bill 265

Policy Statement

NORD letter to Congress outlining short-term and long-term stabilization and improvement proposals for the Affordable Care Act (ACA)

Policy Statement

Coalition letter urging the House to restore Medicare State Health Insurance Assistance Program (SHIP) funding to FY16 levels

Policy Statement

Coalition letter urging Congress to negotiate a bipartisan budget deal that raises the sequestration caps

Policy Statement

Coalition letter opposing proposed budget cuts to newborn screening programs

Policy Statement

Coalition letter urging Senate leadership to protect Medicaid

Policy Statement

Coalition letter urging Congress to reauthorize the Children’s Health Insurance Program (CHIP)

Policy Statement

NORD letter in support of the Medical Nutrition Equity Act of 2017

Policy Statement

Coalition letter in support of New York S.4788/A.7509, acts regarding the substitution of interchangeable biological products

Policy Statement

Zika Coalition letter to the House Committee on Energy and Commerce

Policy Statement

Oregon coalition letter regarding out-of-pocket costs

Policy Statement

NORD letter in support of the Enhancing Clinical Trial Design Act

Policy Statement

Sign-on letter from 120 patient organizations urging Congress to reauthorize FDA User Fee Agreements

Policy Statement

NORD letter in support of the Rare Disease Expert Provision in Iowa House File 653

Policy Statement

MAPRx Coalition letter to the Centers for Medicare & Medicaid Services (CMS)

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Search Results for: reports_by_letter.html

NORD letter to IL Department of Healthcare and Family Services regarding Medicaid DUR for nusinersen and other orphan drugs

Coalition letter in support of the proposed substitute for Michigan House Bill No. 4472

Coalition letter to the Centers for Medicare & Medicaid Services (CMS) regarding the MassHealth Section 1115 Demonstration Amendment Request

Coalition letter to Congress in support of the Ensuring Children’s Access to Specialty Care Act of 2017

Coalition letter urging Congress to include support for loan repayment for pediatric subspecialists as part of the effort to reauthorize the Title VII health professions workforce programs

Coalition letter urging the House to adopt the Senate Appropriations Committee’s funding levels for outreach and enrollment in marketplace coverage under the Affordable Care Act

Coalition letter urging Congress to reject any proposal to increase Medicare Part D copayments for beneficiaries receiving the low-income subsidy (LIS)

Coalition letter to the House Energy and Commerce Committee in opposition to S.204, the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 2017, and H.R. 878, the Right to Try Act of 2017

Sign-on letter from 140 patient organizations urging Congress to keep the Orphan Drug Tax Credit in place

Coalition letter urging Secretary Price to retain the six protected classes under Medicare Part D

NORD letter voicing concerns over California Assembly Bill 265

NORD letter to Congress outlining short-term and long-term stabilization and improvement proposals for the Affordable Care Act (ACA)

Coalition letter urging the House to restore Medicare State Health Insurance Assistance Program (SHIP) funding to FY16 levels

Coalition letter urging Congress to negotiate a bipartisan budget deal that raises the sequestration caps

Coalition letter opposing proposed budget cuts to newborn screening programs

Coalition letter urging Senate leadership to protect Medicaid

Coalition letter urging Congress to reauthorize the Children’s Health Insurance Program (CHIP)

NORD letter in support of the Medical Nutrition Equity Act of 2017

Coalition letter in support of New York S.4788/A.7509, acts regarding the substitution of interchangeable biological products

Zika Coalition letter to the House Committee on Energy and Commerce

Oregon coalition letter regarding out-of-pocket costs

NORD letter in support of the Enhancing Clinical Trial Design Act

Sign-on letter from 120 patient organizations urging Congress to reauthorize FDA User Fee Agreements

NORD letter in support of the Rare Disease Expert Provision in Iowa House File 653

MAPRx Coalition letter to the Centers for Medicare & Medicaid Services (CMS)

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