Search Results for: reports_by_letter.html

Policy Statement

Coalition letter asking Congress to fund research, development, and vital public health agencies.

Policy Statement

Coalition letter urging Congress to pass comprehensive surprise medical billing protections for patients and consumers in an end of year legislative package

Policy Statement

Coalition letter to Congressional Leadership urging swift action on telehealth

Policy Statement

Coalition letter to Oklahoma Governor Stitt regarding the state’s draft crisis standards of care

Policy Statement

Coalition letter to New Mexico Governor Lujan Grisham regarding the state’s draft crisis standards of care

Policy Statement

Coalition letter to Montana Governor Bullock regarding the state’s draft crisis standards of care

Policy Statement

NORD Letter to Advisory Committee on Immunization Practices (ACIP) Regarding Rare Disease Patient Vaccine Prioritization

Policy Statement

NORD comment letter regarding a proposed rule to reform prior authorization processes

Policy Statement

Letter Expressing Support for the New York Rare Disease Workgroup

Policy Statement

Coalition letter to incoming Administration urging the immediate recension of guidance to state Medicaid programs regarding work and community engagement requirements.

Policy Statement

Coalition letter to the Tennessee Legislature urging them to oppose the Tenncare Waiver

Policy Statement

Coalition letter to HHS opposing the fast-tracking of Texas’s 1115 waiver proposal.

Policy Statement

Step Therapy Reform Sign On Letter – Arkansas

Policy Statement

NORD Letter to the Arkansas Senate Public Health, Welfare and Labor Committee Regarding Step Therapy Reform

Policy Statement

NORD letter of thanks to Senator Missy Irvin, sponsor of Arkansas SB 143, a bill to create a Rare Disease Advisory Council

Policy Statement

NORD letter of thanks to Rep. Michelle Gray, sponsor of Arkansas SB 143, a bill to create a Rare Disease Advisory Council

Policy Statement

NORD Letter to Nebraska Banking, Commerce and Insurance Committee Regarding Step Therapy Legislation

Policy Statement

NORD letter to Oregon House Committee on Health Care in support of HB 2508, a bill to improve telehealth access

Policy Statement

NORD Letter to the Arkansas House Public Health, Welfare and Labor Committee regarding step therapy reform

Policy Statement

Coalition comment letter on proposed extension of Arizona’s 1115 Demonstration Project

Policy Statement

Coalition letter to the Virginia House of Delegates in support of a reinsurance program for Virginia’s health insurance marketplace.

Policy Statement

NORD letter to the Arkansas Speaker of the House regarding step therapy reform

Policy Statement

Coalition letter to Chair of the Oregon Senate Committee on Health Care regarding copay assistance

Policy Statement

NORD Letter of Support to the Senate Finance Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS

Policy Statement

NORD Letter of Support to the Senate HELP Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS

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Search Results for: reports_by_letter.html

Coalition letter asking Congress to fund research, development, and vital public health agencies.

Coalition letter urging Congress to pass comprehensive surprise medical billing protections for patients and consumers in an end of year legislative package

Coalition letter to Congressional Leadership urging swift action on telehealth

Coalition letter to Oklahoma Governor Stitt regarding the state’s draft crisis standards of care

Coalition letter to New Mexico Governor Lujan Grisham regarding the state’s draft crisis standards of care

Coalition letter to Montana Governor Bullock regarding the state’s draft crisis standards of care

NORD Letter to Advisory Committee on Immunization Practices (ACIP) Regarding Rare Disease Patient Vaccine Prioritization

NORD comment letter regarding a proposed rule to reform prior authorization processes

Letter Expressing Support for the New York Rare Disease Workgroup

Coalition letter to incoming Administration urging the immediate recension of guidance to state Medicaid programs regarding work and community engagement requirements.

Coalition letter to the Tennessee Legislature urging them to oppose the Tenncare Waiver

Coalition letter to HHS opposing the fast-tracking of Texas’s 1115 waiver proposal.

Step Therapy Reform Sign On Letter – Arkansas

NORD Letter to the Arkansas Senate Public Health, Welfare and Labor Committee Regarding Step Therapy Reform

NORD letter of thanks to Senator Missy Irvin, sponsor of Arkansas SB 143, a bill to create a Rare Disease Advisory Council

NORD letter of thanks to Rep. Michelle Gray, sponsor of Arkansas SB 143, a bill to create a Rare Disease Advisory Council

NORD Letter to Nebraska Banking, Commerce and Insurance Committee Regarding Step Therapy Legislation

NORD letter to Oregon House Committee on Health Care in support of HB 2508, a bill to improve telehealth access

NORD Letter to the Arkansas House Public Health, Welfare and Labor Committee regarding step therapy reform

Coalition comment letter on proposed extension of Arizona’s 1115 Demonstration Project

Coalition letter to the Virginia House of Delegates in support of a reinsurance program for Virginia’s health insurance marketplace.

NORD letter to the Arkansas Speaker of the House regarding step therapy reform

Coalition letter to Chair of the Oregon Senate Committee on Health Care regarding copay assistance

NORD Letter of Support to the Senate Finance Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS

NORD Letter of Support to the Senate HELP Committee on the Nomination of Attorney General Xavier Becerra to be Secretary of HHS

Make 2026 Count: Gift research, care, and advocacy for families everywhere

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