Search Results for: reports_by_letter.html

Policy Statement

NORD letter of support for the nomination of Chiquita Brooks-LaSure to be Administrator of the Centers for Medicare and Medicaid Services.

Policy Statement

NORD letter of support to the NJ Senate Commerce Committee Chair in support of Senate Bill 3051-step therapy reform legislation

Policy Statement

NORD letter of support to Alaska Senate Health and Social Services committee in support of Senate Bill 78 to increase telehealth access

Policy Statement

NORD letter of support to Iowa Senate leadership encouraging passage of House File 431 before the end of session to expand access to telehealth services

Policy Statement

NORD and 11 other patient organizations submit a letter of support to the Florida Speaker of the House in support of House Bill 1373 to establish an RDAC

Policy Statement

NORD joins a coalition letter to the Minnesota House Ways and Means Committee to encourage the inclusion of HF 633 in the final omnibus bill, HF 2128

Policy Statement

NORD letter of support to the Delaware House and Human Development Committee in support of House Bill 160 to support increased access to telehealth after the COVID-19 pandemic

Policy Statement

NORD joins a coalition letter with over 30 patient advocacy organizations to President Biden outlining health care priorities for the next legislative package

Policy Statement

NORD joins a coalition letter with over 30 patient organizations to Congressional leadership outlining health care priorities for the next legislative package

Policy Statement

NORD joins coalition letter with 19 additional patient organizations to HHS opposing Oklahoma’s request to eliminate retroactive eligibility for Medicaid patients

Policy Statement

NORD and 26 other patient organizations submit a letter of support to the Louisiana House Committee on Health and Welfare in support of House Bill 460 to establish an RDAC

Policy Statement

NORD letter to the Oregon Senate Committee on Health Care in support of HB2508, a bill to improve telehealth access

Policy Statement

NORD and 21 other patient organizations submit a letter of support to the California Senate Appropriations Committee in support of Senate Bill 247 to establish an RDAC and Rare Disease Ombudsperson

Policy Statement

NORD letter to the Oregon Senate Committee on Health Care regarding utilization management

Policy Statement

NORD letter to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council

Policy Statement

NORD and 11 other patient organizations submit a letter of support to the Michigan House Health Policy Committee in support of House Bill 4654 to establish an RDAC

Policy Statement

NORD letter of thanks to Senator Hewitt, cosponsor of Louisiana HB 460, a bill to create a Rare Disease Advisory Council

Policy Statement

NORD and 27 other patient organizations submit a letter of support to the Louisiana Senate Committee on Health and Welfare in support of House Bill 460 to establish an RDAC

Policy Statement

NORD and eighteen patient organizations send letter urging CMS to rescind the TennCare III 1115 waiver

Policy Statement

NORD and seven other patient organizations send a letter to Members of the Ohio Senate Oversight and Reform Committee expressing continued concern that SB17 would harm access to health care for patients

Policy Statement

NORD and nine other patient organizations submit a letter of support to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council

Policy Statement

NORD and 27 other patient organizations submit a letter of support to New Jersey Governor urging him to sign A4016/S2682 into law, to create a Rare Disease Advisory Council (RDAC)

Policy Statement

NORD joins several patient organizations in a letter to the Administration with recommendations on the No Surprises Act interim final rule

Policy Statement

NORD and 28 other patient organizations submit a letter of support to Louisiana Governor urging him to sign HB 460 into law, to establish an RDAC

Policy Statement

NORD submits letter of support to Rhode Island’s Speaker of the House in support of Senate Bill 302/House Bill 5704, step therapy reform legislation

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Search Results for: reports_by_letter.html

NORD letter of support for the nomination of Chiquita Brooks-LaSure to be Administrator of the Centers for Medicare and Medicaid Services.

NORD letter of support to the NJ Senate Commerce Committee Chair in support of Senate Bill 3051-step therapy reform legislation

NORD letter of support to Alaska Senate Health and Social Services committee in support of Senate Bill 78 to increase telehealth access

NORD letter of support to Iowa Senate leadership encouraging passage of House File 431 before the end of session to expand access to telehealth services

NORD and 11 other patient organizations submit a letter of support to the Florida Speaker of the House in support of House Bill 1373 to establish an RDAC

NORD joins a coalition letter to the Minnesota House Ways and Means Committee to encourage the inclusion of HF 633 in the final omnibus bill, HF 2128

NORD letter of support to the Delaware House and Human Development Committee in support of House Bill 160 to support increased access to telehealth after the COVID-19 pandemic

NORD joins a coalition letter with over 30 patient advocacy organizations to President Biden outlining health care priorities for the next legislative package

NORD joins a coalition letter with over 30 patient organizations to Congressional leadership outlining health care priorities for the next legislative package

NORD joins coalition letter with 19 additional patient organizations to HHS opposing Oklahoma’s request to eliminate retroactive eligibility for Medicaid patients

NORD and 26 other patient organizations submit a letter of support to the Louisiana House Committee on Health and Welfare in support of House Bill 460 to establish an RDAC

NORD letter to the Oregon Senate Committee on Health Care in support of HB2508, a bill to improve telehealth access

NORD and 21 other patient organizations submit a letter of support to the California Senate Appropriations Committee in support of Senate Bill 247 to establish an RDAC and Rare Disease Ombudsperson

NORD letter to the Oregon Senate Committee on Health Care regarding utilization management

NORD letter to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council

NORD and 11 other patient organizations submit a letter of support to the Michigan House Health Policy Committee in support of House Bill 4654 to establish an RDAC

NORD letter of thanks to Senator Hewitt, cosponsor of Louisiana HB 460, a bill to create a Rare Disease Advisory Council

NORD and 27 other patient organizations submit a letter of support to the Louisiana Senate Committee on Health and Welfare in support of House Bill 460 to establish an RDAC

NORD and eighteen patient organizations send letter urging CMS to rescind the TennCare III 1115 waiver

NORD and seven other patient organizations send a letter to Members of the Ohio Senate Oversight and Reform Committee expressing continued concern that SB17 would harm access to health care for patients

NORD and nine other patient organizations submit a letter of support to Florida Governor urging him to sign SB 272/HB 1373 into law, to create a rare disease advisory council

NORD and 27 other patient organizations submit a letter of support to New Jersey Governor urging him to sign A4016/S2682 into law, to create a Rare Disease Advisory Council (RDAC)

NORD joins several patient organizations in a letter to the Administration with recommendations on the No Surprises Act interim final rule

NORD and 28 other patient organizations submit a letter of support to Louisiana Governor urging him to sign HB 460 into law, to establish an RDAC

NORD submits letter of support to Rhode Island’s Speaker of the House in support of Senate Bill 302/House Bill 5704, step therapy reform legislation

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