In honor of Rare Disease Day, NORD invites the rare disease community to show their stripes! The zebra is the official symbol of rare diseases in the United States and is noted for its black and white stripes, which are central to its uniqueness. Everyone has his/her own stripes, those characteristics that make each individual distinct. While each of the more than 7,000 rare diseases are unique, there are many commonalities that unite the rare disease community together to raise awareness. In the spirit of raising the profile of the rare disease community at large and celebrating Rare Disease Day, this year NORD will promote specific ways that individuals, organizations and groups can show their stripes.
Show Your Stripes by sharing your personal story!
In order to submit a story, please review the story-telling tips and content guidelines, then proceed with submitting your story by using the form at the bottom of this webpage.