https://rarediseases.org/nord-state-report-card/
https://rareaction.org
https://rareaction.org/resources-for-advocates/state-profiles/alabama
In this sixth edition of NORD’s State Report Card we analyze all 50 states and Washington, D.C., on eight policy issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background on the report and to view additional resources, please visit the State Report Card landing page.
More - https://rarediseases.org/policy-issues/medicaid-eligibility/
Medicaid Eligibility (% of FPL) for Childless Adults: F
Medicaid Eligibility (% of FPL) for Parents of a Dependent Child: D
Medicaid Eligibility (% of FPL) for Pregnant Women: D
Medicaid Eligibility (% of FPL for Family) for Children: A
More - https://rarediseases.org/policy-issues/medical-nutrition/
Private Insurance Coverage Requirements: F
Private Insurance Covered Disorders: F
State Coverage Requirements: F
State Covered Disorders: F
More - https://rarediseases.org/policy-issues/newborn-screening/
Screening for RUSP Core Conditions: C
Adding Screens: B
Funding: B
Dried Blood Spot (DBS) Use: B
Advisory Committee: B
More - https://rarediseases.org/policy-issues/out-of-pocket/
More - https://rarediseases.org/policy-issues/medicaid-1115-waivers/
More - https://rarediseases.org/policy-issues/state-regulated-insurance/
Initial Plan Duration: F
Renewals: F
Maximum Duration: F
More - https://rarediseases.org/policy-issues/rare-disease-advisory-councils/
Alabama created a Rare Disease Advisory Council in 2018 that is housed within the School of Medicine at University of Alabama Birmingham.
More - https://rarediseases.org/policy-issues/step-therapy/
Categories of Exceptions: F
Exceptions Process: F
Process Based Off Clinical Practice: F
Timeline in Statute: F
