In this sixth edition of NORD’s State Report Card we analyze all 50 states and Washington, D.C., on eight policy issues that impact the rare disease community. Each state has their own individual report card (as seen below), but for more background on the report and to view additional resources, please visit the State Report Card landing page.
More - https://rarediseases.org/policy-issues/medicaid-eligibility/
Medicaid Eligibility (% of FPL) for Childless Adults: FMedicaid Eligibility (% of FPL) for Parents of a Dependent Child: CMedicaid Eligibility (% of FPL) for Pregnant Women: BMedicaid Eligibility (% of FPL for Family) for Children: B
More - https://rarediseases.org/policy-issues/medical-nutrition/
Private Insurance Coverage Requirements: FPrivate Insurance Covered Disorders: FState Coverage Requirements: DState Covered Disorders: F
More - https://rarediseases.org/policy-issues/newborn-screening/
Screening for RUSP Core Conditions: CAdding Screens: BFunding: ADried Blood Spot (DBS) Use: BAdvisory Committee: C
More - https://rarediseases.org/policy-issues/out-of-pocket/
More - https://rarediseases.org/policy-issues/medicaid-1115-waivers/
More - https://rarediseases.org/policy-issues/state-regulated-insurance/
Initial Plan Duration: DRenewals: FMaximum Duration: D
More - https://rarediseases.org/policy-issues/rare-disease-advisory-councils/
South Carolina has not yet created a Rare Disease Advisory Council.
More - https://rarediseases.org/policy-issues/step-therapy/
Categories of Exceptions: FExceptions Process: FProcess Based Off Clinical Practice: FTimeline in Statute: F