A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved.
If the Senate is able to move forward with a version of the BCRA, individuals with rare diseases could lose access to life-saving Medicaid, and the orphan drugs, specialty hospitals, physician specialists, and programs to provide specialized care at home that it covers. In addition, the bill could then allow states to waive the Federal Essential Health Benefits (EHBs), and allow insurers to offer non-ACA-compliant health plans. Both of these provisions would undermine critical protections for patients with pre-existing conditions.
remind your Senators what’s at stake.
Cutting Medicaid by $800 billion, rolling back pre-existing condition protections, and repealing without replacing would all harm rare disease patients.