Oct. 1, 2019
Posted by Valaree DonFrancesco
The big day is here – Rare Cancer Day! Launched by the National Organization for Rare DisordersⓇ (NORD) and the NORD Rare Cancer Coalition, the goal of #RareCancerDay is to raise critical awareness of rare cancers and the need for greater research funding and patient support.
“I’ve never heard of that!” is often the response people living with rare cancers hear when sharing news of their diagnosis. People living with rare cancers also deal with a lack of available information and effective treatment options, in addition to the isolation, fear, frustration and other overwhelming feelings that can accompany a more common cancer diagnosis. October 1 is a day for raising awareness about the challenges people living with rare cancers face as well as highlighting the need for early diagnosis.
Today we are asking the world at large to join in #RareCancerDay by using the hashtag, posting online messages of support for the community and taking part in today’s activities, which include:
12:00p.m. Eastern – Facebook Live with NORD Director of Membership Debbie Drell sharing facts on rare cancers gathered from Rare Cancer Coalition Members. Join us: http://bit.ly/RCD-live
1:00p.m. Eastern – Free NORD webinar – Rare Cancers: Facts, Challenges and Patient Stories, featuring a panel of speakers including a top American Cancer Society researcher, patients and advocates discussing the state of rare cancers in America, stories of diagnosis and survival and ways to get involved in raising awareness. Register here: https://cc.readytalk.com/r/ix7ujckulvic&eom
All day – download the #RareCancerDay social media toolkit, with suggested social posts and graphics, and share rare cancer facts with your followers in order to raise awareness. Also, follow NORD on social media and share/retweet/like our posts on the day.
All day – visit the NORD website to read the “Voices of Rare Cancer” stories of brave individuals like Nicole, Graeleigh, Paul, Mackenzie and many others.