Recognize Rare Cancer Day with NORD

Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by the NORD Rare Cancer Coalition^®, which is composed of 30 rare cancer-specific member organizations, Rare Cancer Day is observed on September 23 to highlight the challenges patients face and to unify individuals living with rare cancers for awareness and early diagnosis.

Get Involved

Every rare cancer journey is unique, and every story has the power to make a difference. Ahead of Rare Cancer Day on September 23, NORD’s Rare Cancer Coalition invites patients and caregivers to share their experiences living with or caring for someone affected by a rare cancer.

Your voice can help raise awareness, foster understanding, advocate for earlier diagnosis and better support for the rare cancer community.

Submit your story through our Share Your Story form and select “Rare Cancer Day” under the “campaign interests” dropdown.

Join the conversation this Rare Cancer Day and raise awareness by sharing information about rare cancer on social media and with your state officials. Your voice matters in spreading knowledge and fostering support for those affected by rare cancer.
#RareCancerDay

Watch NORD’s Rare Cancer Day 2026 Webinar

What happens when patients help shape rare cancer research?

In recognition of the 8th official Rare Cancer Day, NORD’s Rare Cancer Coalition brought together patients and experts to explore the opportunities and challenges of patient participation in rare cancer research. The discussion highlights why incorporating patient perspectives is essential to advancing future studies.

Whether you are a patient, caregiver, advocate, researcher, or healthcare professional, this webinar offers valuable insights into the many ways patients can contribute to research and help drive progress toward better outcomes for the rare cancer community.

What to Know About Rare Cancer

Click and download the individual graphics below for sharing or click here to download the all the images at once. All of the Rare Cancer Day graphics are free for public use.

Download Graphics

Continuing Medical Education

NORD and Platform Q health are proud to feature ongoing courses about Rare Cancers as an important part of our CME offerings. These courses are available for credit for one year following their publication.