Advocates, Patient & Caregiver, Patient Organizations, Students & Volunteers, General Resources and Activities, Rare Disease Day, PDF, Other, October 14, 2022 Coloring Pages
Advocates, Patient & Caregiver, Patient Organizations, Students & Volunteers, Rare Disease Day, PDF, Other, Municipalities Proclamation Toolkit
Advocates, Patient & Caregiver, Patient Organizations, Students & Volunteers, General Resources and Activities, Rare Disease Day, PDF, Other, Printable Stickers
Advocates, Medical Professionals, Patient Organizations, Researchers, Legislative Advocacy, Research & Drug Development, PDF, Research, September 28, 2022 Impact of the Orphan Drug Tax Credit
Advocates, Medical Professionals, Researchers, Legislative Advocacy, Research & Drug Development, PDF, Research, FDA’s Accelerated Approval Pathway: A Rare Disease Perspective
Advocates, Medical Professionals, Patient Organizations, Researchers, Students & Volunteers, Research & Drug Development, PDF, Research, Orphan Drugs in the U.S.: An Examination of Patents and Orphan Drug Exclusivity
Advocates, Patient Organizations, Researchers, Legislative Advocacy, Research & Drug Development, PDF, Research, Orphan Drugs in the U.S.: Rare Disease Innovation and Cost Trends in 2019
Advocates, Researchers, Legislative Advocacy, Understanding Rare Disease, PDF, Publication, Research, Barriers to Rare Disease Diagnosis, Care and Treatment in the U.S.: A 30-Year Comparative Analysis
Advocates, Researchers, Students & Volunteers, Legislative Advocacy, Research & Drug Development, Infographic, Publication, Research, Barriers to Rare Disease Diagnosis, Care and Treatment in the U.S.: A 30-Year Comparative Analysis Fact Sheet