Rare Disease Resource Library

Get Involved, Rare Cancer, Understanding Rare Disease, Webinar, Education, Membership,

October 6, 2023

Rare Cancer Day Webinar 2023

Forming a Foundation, Research Ready, Board of Directors, Medical Leadership, Patient Organizations, Membership, PDF, Membership,

October 20, 2022

Letter Templates for New Nonprofits for Board Members and Medical Advisors

Forming a Foundation, Research Ready, Medical Leadership, Patient Organizations, Membership, PDF, Membership,

How to Research Potential Members of Your Medical/Scientific Advisory Board

Forming a Foundation, Patient & Caregiver, Patient Organizations, Students & Volunteers, Get Involved, Understanding Rare Disease, PDF, Membership,

Finding & Connecting with Others in the Rare Community

Forming a Foundation, Governance, Advocates, Patient Organizations, Advocacy, Membership, PDF, Membership,

Business Plan Template & Example (Print Ready)

Governance, Advocates, Patient Organizations, Advocacy, Membership, PDF, Membership,

Basics of Nonprofit Advocacy

Advocates, Patient Organizations, Membership, RDCA-DAP, Research & Drug Development, Educational Video, Membership,

October 17, 2022

How Patient Nonprofits Can Help Accelerate Drug Development

Forming a Foundation, Research Ready, Governance, Patient Organizations, Membership, Educational Video, Membership,

October 14, 2022

The Nonprofit Roadmap: Strategic Planning for Beginners

Research Ready, Patient Organizations, Membership, Research & Drug Development, PDF, Membership,

Research Ready Quick Reference Guide

Advocates, Patient Organizations, Students & Volunteers, Advocacy, Get Involved, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), Educational Video, Webinar, Membership, Policy,

RDAC Stakeholders Meeting 2021