Rare Disease Resource Library

Advocates, Medical Professionals, Researchers, Advocacy, RDCA-DAP, Research & Drug Development, Educational Video, Research,

October 17, 2022

What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform

Advocates, Medical Professionals, Researchers, Advocacy, RDCA-DAP, Research & Drug Development, Infographic, PDF, Research,

RDCA-DAP® Data Collaboration Center Graphic

Advocates, Medical Professionals, Researchers, RDCA-DAP, Research & Drug Development, Educational Video, Webinar, Research,

Sharing Data With RDCA-DAP: Your Questions Answered

Researchers, RDCA-DAP, Research & Drug Development, Educational Video, Externally-Led Patient-Focused Drug Development, Webinar, Research,

How Will RDCA-DAP® Support Patient Focused Drug Development?

Forming a Foundation, Research Ready, Research & Registries, Medical Professionals, Patient & Caregiver, Researchers, Research & Drug Development, Educational Video, Webinar, Research,

October 14, 2022

Natural History Studies and Patient Registries

Medical Professionals, Patient Organizations, Researchers, Regulatory, PDF, Other,

September 28, 2022

FDA’s Flexibility in Regulating Therapies

Advocates, Medical Professionals, Patient Organizations, Researchers, Legislative Advocacy, Research & Drug Development, PDF, Research,

Impact of the Orphan Drug Tax Credit

Advocates, Patient & Caregiver, Researchers, Students & Volunteers, COVID-19, PDF, Research,

COVID-19 Community Survey Report #1

Researchers, Research & Drug Development, Collection, Research,

RDCA-DAP Resource Center

Advocates, Medical Professionals, Researchers, Legislative Advocacy, Research & Drug Development, PDF, Research,

FDA’s Accelerated Approval Pathway: A Rare Disease Perspective