Rare Disease Resource Library

Medical Professionals, Patients & Caregivers, Genetic Testing, Educational Video, Education,

October 16, 2024

¿Por qué debería hacerme una prueba genética si ya tengo un diagnóstico?

Patient Organizations, Patients & Caregivers, Genetic Testing, Understanding Rare Disease, Educational Video, Education,

Why Should I Get Genetic Testing If I Already Have a Diagnosis?

Medical Professionals, Patient & Caregiver, Genetic Testing, Educational Video,

November 3, 2023

Pruebas Genéticas Para Enfermedades Poco Comunes Y No Diagnosticadas

Medical Professionals, Patient & Caregiver, Genetic Testing, Educational Video, Education,

Genetic Testing for Rare and Undiagnosed Diseases

RDCA-DAP, Educational Video, Education,

January 24, 2023

NORD Data Literacy

Advocates, Medical Professionals, Patient & Caregiver, Patient Organizations, Researchers, Gene Therapy, Collection, Educational Video,

November 3, 2022

Genome Editing 4 – The approval process

Advocates, Medical Professionals, Patient & Caregiver, Patient Organizations, Researchers, Gene Therapy, Collection, Educational Video,

Genome Editing 3 – How do I participate and what is the role of patient organizations?

Advocates, Medical Professionals, Patient & Caregiver, Patient Organizations, Researchers, Gene Therapy, Collection, Educational Video,

Genome Editing 2 – What are the safety, ethical and cost concerns

Medical Professionals, Patient & Caregiver, Researchers, Gene Therapy, Collection, Educational Video,

Genome Editing 1 – What is genome editing?

Advocates, Medical Professionals, Patient & Caregiver, Researchers, RDCA-DAP, Research & Drug Development, Educational Video, Webinar, Research,

October 27, 2022

What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform