Rare Disease Resource Library

Advocates, Advocacy, Rare Disease Advisory Councils (RDAC), Webinar, Policy,

November 15, 2024

Rare Disease Advisory Council 2024 Stakeholder Webinar Recording

Advocates, Patient & Caregiver, Insurance, Legislative Advocacy, Regulatory, Webinar, Policy,

November 27, 2023

Medicaid Unwinding

Get Involved, Rare Cancer, Understanding Rare Disease, Webinar, Education, Membership,

October 6, 2023

Rare Cancer Day Webinar 2023

Advocates, Medical Professionals, Researchers, Students & Volunteers, Rare Disease Advisory Councils (RDAC), Webinar, Policy,

February 7, 2023

RDAC Stakeholders Meeting – 2022

Advocates, Medical Professionals, Patient & Caregiver, Researchers, RDCA-DAP, Research & Drug Development, Educational Video, Webinar, Research,

October 27, 2022

What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform

Medical Professionals, Patient & Caregiver, Researchers, Gene Therapy, Educational Video, Webinar, Research,

October 17, 2022

Gene Therapy: Yesterday, Today, and Tomorrow

Advocates, Patient Organizations, Students & Volunteers, Advocacy, Legislative Advocacy, Rare Disease Advisory Councils (RDAC), Educational Video, Webinar, Policy,

Webinar Recording: Your State Just Enacted an RDAC – Now What?

Advocates, Medical Professionals, Researchers, RDCA-DAP, Regulatory, Research & Drug Development, Educational Video, Webinar, Research,

From Data To Cures: Speeding The Way For Rare Diseases

Advocates, Medical Professionals, Researchers, Advocacy, RDCA-DAP, Research & Drug Development, Educational Video, Webinar, Research,

RDCA-DAP® Launch Live Stream – AM Part 1

Advocates, Medical Professionals, Researchers, RDCA-DAP, Regulatory, Research & Drug Development, Educational Video, Webinar, Research,

How Can Patients and Advocates Help Accelerate Drug Development?