Published March 2, 2016 by NORD
“One day, I wish everyone dealing with a rare condition will have access to a treatment. I really hope you will enjoy reading these memories… and learn more about this …
Continue reading “NORD Founder Publishes Memoir Detailing Her Tireless Work as Parent-Advocate”
Read morePublished February 29, 2016 by NORD
On this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in …
Continue reading “Today is Rare Disease Day®”
Read morePublished February 24, 2016 by NORD
The following statement was issued today by Peter L. Saltonstall, President and CEO of NORD, on the confirmation by the U.S. Senate of Robert Califf, M.D., as Commissioner of the …
Continue reading “NORD Issues Statement on New FDA Commissioner Robert Califf, M.D.”
Read morePublished February 11, 2016 by NORD
“I want to shake up what people think is possible,” says Mary Kitlowski – “ both people with rare diseases, and people without. If I can make a difference by …
Continue reading “Running on Air for Rare Disease Day”
Read morePublished February 4, 2016 by NORD
Watch the global video for Rare Disease Day with your friends, family, and colleagues!
Read morePublished January 21, 2016 by NORD
Join us for a nationwide conversation about rare diseases on: Tuesday, March 1, 2016 1:00 – 2:00 p.m. EST In celebration of Rare Disease Day®, NORD will co-sponsor a tweetchat on the topic …
Continue reading “Join NORD and ABC News for a Rare Disease Day Tweetchat on March 1”
Read morePublished January 18, 2016 by NORD
Patients, caregivers, and runners: sign up to get involved with the Running for Rare Team!
Read morePublished January 12, 2016 by NORD
When the Patient-Focused Drug Development (PFDD) Initiative was first announced as part of the 2012 PDUFA reauthorization, many patient organizations expressed concern that the initiative’s public meetings would focus on …
Read morePublished January 5, 2016 by NORD
Join us in celebrating the rare disease community. Register for the 2016 Rare Impact Awards.
Read morePublished January 5, 2016 by NORD
The following Letter to the Editor by NORD President & CEO Peter L. Saltonstall appeared in the Wall Street Journal (January 2, 2016). You read the letter online on the …
Continue reading “Wall Street Journal Publishes NORD Letter to the Editor”
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