Published March 15, 2017 by NORD
Washington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the …
Read morePublished March 8, 2017 by NORD
Washington, D.C., March 8, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in advance …
Continue reading “NORD Issues Statement as House Committees Review the American Health Care Act”
Read morePublished March 7, 2017 by NORD
Washington, D.C., March 7, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response …
Continue reading “NORD Issues Statement on Release of the American Health Care Act”
Read morePublished March 6, 2017 by NORD
Washington, D.C., March 6, 2017 – A coalition of eleven nonpartisan patient groups today laid out a joint set of goals they want Congress to focus on as it considers …
Continue reading “Eleven Major Patient Groups Outline Joint Position on Health Care Reform”
Read morePublished March 1, 2017 by NORD
NORD Issues Statement on President Trump’s Address to Congress Washington, D.C., March 1, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans …
Continue reading “NORD Issues Statement on President Trump’s Address to Congress”
Read morePublished February 28, 2017 by NORD
Danbury, Conn., February 28, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, announced a year-long awareness campaign for …
Read morePublished February 13, 2017 by NORD
June 1-4 in Ashford, CT: Second-ever Rare Disease Summer Family Camp
Read morePublished February 9, 2017 by NORD
In celebration of Rare Disease Day®, NORD will co-host a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. The tweetchat will take place on Tuesday, Feb. 28, …
Continue reading “Join NORD and ABC News for a Rare Disease Day® Tweetchat on Feb. 28”
Read morePublished February 3, 2017 by NORD
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Read morePublished January 11, 2017 by NORD
Washington, D.C., January 11, 2017—Data released by the U.S. Food and Drug Administration (FDA) show that 9 of the 22 new medications approved in 2016, or 41 percent, are orphan drugs to …
Continue reading “Orphan Drugs Represent 41 Percent of All New Medications”
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