Published June 17, 2016 by NORD
The strength of the rare disease community is defined by the people in it, and rare dads are some of our strongest advocates. You are always there to try and …
Continue reading “Happy Father’s Day from NORD”
Read morePublished June 16, 2016 by NORD
NORD, the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, applauds the Senate for authorizing medical foods coverage in the National Defense Authorization …
Read morePublished June 7, 2016 by NORD
Today, June 7, join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass …
Continue reading “Today, Tell Congress We Need #CuresNow”
Read morePublished May 31, 2016 by NORD
RareAction continues to make strides around the country for the 1 in 10 Americans with rare diseases. In this version of the State Policy Legislative Tracker, there is an increase …
Continue reading “RareAction Network℠ Releases May/June State Policy Legislative Tracker”
Read morePublished May 25, 2016 by NORD
May 26, 2016 1:00 – 2:00 p.m. EDT A trip to the emergency room with a rare disorder can present challenges. For one, few members of the ER staff may …
Read morePublished May 23, 2016 by NORD
Learn more about the Undiagnosed Diseases Network (UDN) by registering for this free webinar (June 3).
Read morePublished May 23, 2016 by NORD
NORD’s Rare Diseases and Orphan Products Breakthrough Summit will be held in Arlington, VA October 17-18
Read morePublished May 12, 2016 by NORD
The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community. …
Continue reading “NORD to Hold Rare Diseases Roundtable”
Read morePublished April 29, 2016 by NORD
Patient Assistance Programs: Essential Patient Access to Vital Medicines Recently, some health care analysts have broadly criticized patient assistance programs (PAPs) as a significant cause of growth in prescription drug …
Continue reading “New Paper Addresses Health Care Costs and Patient Assistance Programs”
Read morePublished April 22, 2016 by NORD
We are making progress throughout the country for the 1 in 10 Americans with rare diseases. Here is a list of legislative initiatives that NORD and our network of advocates …
Continue reading “RareAction Network℠ Releases April State Legislative Tracker”
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