Rare Disease News

Register for a FREE Webinar on the Undiagnosed Diseases Network (UDN)

Published May 23, 2016 by NORD

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Learn more about the Undiagnosed Diseases Network (UDN) by registering for this free webinar (June 3).

NORD Summit 2016

Published May 23, 2016 by NORD

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NORD’s Rare Diseases and Orphan Products Breakthrough Summit will be held in Arlington, VA October 17-18

NORD to Hold Rare Diseases Roundtable

Published May 12, 2016 by NORD

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The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community. …

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Introducing the 2016 Rare Disease Day® Highlights Video

Published April 7, 2016 by NORD

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Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day®. This is the one day that everyone comes together globally to …

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NORD Announces 2016 Rare Impact Award Recipients to be Honored on May 17

Published March 17, 2016 by NORD

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Continuing its annual tradition of recognizing the people, organizations, advocates and companies who are making a difference in the fight against rare diseases, the National Organization for Rare Disorders (NORD)® …

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Running for Rare Named an Official Charity Partner of the 2016 TCS New York City Marathon Set for Sunday, November 6, 2016

Published March 15, 2016 by NORD

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Running for Rare was named an Official Charity Partner of the 2016 TCS New York City Marathon, it was announced today by the National Organization for Rare Disorders (NORD). The …

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Running for Rare Marathon Team Expands Under NORD

Published March 11, 2016 by NORD

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The Running for Rare marathon team will expand under new governance with the National Organization for Rare Disorders (NORD), the leading independent nonprofit representing all people with rare diseases and …

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Apply Now: The Hole in the Wall Gang Camp Hosts First-Ever Rare Disease Family Camp

Published March 4, 2016 by NORD

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Apply for the first-ever rare disease summer family camp!

Today is Rare Disease Day®

Published February 29, 2016 by NORD

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On this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in …

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Rare Disease Day Video for 2016 Launched

Published February 4, 2016 by NORD

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Watch the global video for Rare Disease Day with your friends, family, and colleagues!