Published May 28, 2026 by NORD
For years, the National Organization for Rare Disorders (NORD®) Living Rare, Living Stronger® (LRLS) Patient & Family Forum has convened rare disease patients, families, caregivers, and experts to forge lasting …
Continue reading “Recap: NORD Living Rare, Living Stronger in Colorado”
Read morePublished May 21, 2026 by NORD
Since 2019, the National Organization for Rare Disorders (NORD®) Living Rare, Living Stronger® Patient & Family Forum has convened rare disease patients, families, caregivers, and experts to form lasting, impactful …
Continue reading “Recap: NORD Living Rare, Living Stronger in Arizona”
Read morePublished May 6, 2026 by NORD
Advancing Innovation in Rare Disease Research At NORD’s 2nd Annual Rare Disease Scientific Symposium, the central question was not whether rare disease innovation is possible, but how to make it …
Continue reading “2026 Rare Disease Scientific Symposium: Event Recap and Recordings”
Read morePublished February 23, 2026 by NORD
NORD Calls on Nation to “Show Your Stripes” on Global Rare Disease Day, Feb. 28 NORWELL, Mass., FEB. 23, 2026 – The National Organization for Rare Disorders (NORD®) is calling attention to rare diseases …
Continue reading “More Than 30 Million Americans Living with Rare Diseases”
Read morePublished February 5, 2026 by NORD
Leaders across research, clinical care, industry, and patient advocacy convene to accelerate rare disease breakthroughs from discovery to real-world patient impact Norwell, Ma., Feb. 5, 2026 — The National Organization …
Read morePublished November 14, 2025 by NORD
For one powerful day in Milwaukee, more than 110 people impacted by rare diseases — patients, caregivers, families, clinicians, and advocates — came together to share something simple yet profound: …
Read morePublished November 6, 2025 by NORD
National Organization for Rare Disorders (NORD®) Brings Together 100+ Wis. Families for a Day of Hope, Learning, and Community During National Family Caregivers Month WHAT: As National Family Caregivers Month shines a light on those who care for loved ones, the …
Read morePublished October 29, 2025 by NORD
The 2025 NORD® Rare Diseases & Orphan Products Breakthrough Summit® was more than a gathering. It was a declaration. Well over 800 patient advocates, families, researchers, clinicians, and industry showed …
Continue reading “From Voices to Breakthroughs: Celebrating the 2025 NORD Breakthrough Summit”
Read morePublished October 21, 2025 by NORD
Oct. 21, 2025 — U.S. Senator Amy Klobuchar joined the National Organization for Rare Disorders (NORD®) Rare Diseases & Orphan Products Breakthrough Summit® today, offering encouragement to an audience of …
Continue reading “Senator Amy Klobuchar Joins Rare Disease Community at National Gathering”
Read morePublished October 14, 2025 by NORD
Lightning round poster presentations highlight cutting-edge insights on issues ranging from Medicaid coverage disparities to real-world data innovation The future of rare disease advancements will take center stage at the …
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