Rare Disease News

Join NORD and ABC News for a Rare Disease Day® Tweetchat on Feb. 28

Published February 9, 2017 by NORD

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In celebration of Rare Disease Day®, NORD will co-host a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. The tweetchat will take place on Tuesday, Feb. 28, …

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FDA Commissioner Dr. Robert Califf Delivers Keynote Address at NORD Summit

Published October 17, 2016 by NORD

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FDA Commissioner Dr. Robert Califf delivered the following keynote address today at NORD’s 2016 Rare Diseases and Orphan Products Breakthrough Summit. The Summit was attended by 600 people from all areas …

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Nominations Open for NORD’s 2017 Rare Impact Awards

Published October 14, 2016 by NORD

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Registration is open for the 2017 Rare Impact Awards.

Rare Diseases & Orphan Products Breakthrough Summit Speakers

Published October 5, 2016 by NORD

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Washington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases …

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Running for Rare Named an Official Charity Partner

Published September 30, 2016 by NORD

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32nd Edition of Skechers Performance Los Angeles Marathon Set for March 19, 2017 Washington, D.C., September 30, 2016—Running for Rare was named an Official Charity Partner of the 2017 Skechers …

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Key Dates Approaching for NORD Summit

Published August 18, 2016 by NORD

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Researchers have the opportunity to present research to a large and diverse audience during the 2016 #NORDSummit

FDA Commissioner Dr. Robert Califf to Speak at NORD Summit in October

Published June 30, 2016 by NORD

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The Commissioner of the U.S. Food and Drug Administration, Robert Califf, M.D., will speak at NORD’s annual Rare Diseases & Orphan Products Breakthrough Summit in October. Commissioner Califf will provide …

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Register: Rally for Medical Research Hill Day 2016, Sept. 21-22

Published June 29, 2016 by NORD

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Save the date for Sept. 21-22 for a nationwide day of action! Join NORD and 300+ partner organizations as we ‘rally’ for medical research as part of the annual Rally …

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See What’s New and Exciting at the NORD 2016 Summit, Oct. 17-18!

Published June 23, 2016 by NORD

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Events

The complete agenda for the 2016 Rare Diseases & Orphan Products Breakthrough Summit is just around the corner! We’re excited to share with you all that we’ve been working on – here’s …

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Join the Team: Running for Rare Takes on Hartford

Published June 21, 2016 by NORD

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Join us in Hartford, Conn. on October 8th! For the first time, NORD’s charity marathon team, Running for Rare, will participate in the Eversource Hartford Marathon. We are thrilled to have the team …

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