Rare Disease Summer Family Camp: A Place to Call Home
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June 1-4 in Ashford, CT: Second-ever Rare Disease Summer Family Camp
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Published February 13, 2017 by NORD
June 1-4 in Ashford, CT: Second-ever Rare Disease Summer Family Camp
Read morePublished February 9, 2017 by NORD
In celebration of Rare Disease Day®, NORD will co-host a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. The tweetchat will take place on Tuesday, Feb. 28, …
Continue reading “Join NORD and ABC News for a Rare Disease Day® Tweetchat on Feb. 28”
Read morePublished October 17, 2016 by NORD
FDA Commissioner Dr. Robert Califf delivered the following keynote address today at NORD’s 2016 Rare Diseases and Orphan Products Breakthrough Summit. The Summit was attended by 600 people from all areas …
Continue reading “FDA Commissioner Dr. Robert Califf Delivers Keynote Address at NORD Summit”
Read morePublished October 14, 2016 by NORD
Registration is open for the 2017 Rare Impact Awards.
Read morePublished October 5, 2016 by NORD
Washington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases …
Continue reading “Rare Diseases & Orphan Products Breakthrough Summit Speakers”
Read morePublished September 30, 2016 by NORD
32nd Edition of Skechers Performance Los Angeles Marathon Set for March 19, 2017 Washington, D.C., September 30, 2016—Running for Rare was named an Official Charity Partner of the 2017 Skechers …
Continue reading “Running for Rare Named an Official Charity Partner”
Read morePublished August 18, 2016 by NORD
Researchers have the opportunity to present research to a large and diverse audience during the 2016 #NORDSummit
Read morePublished June 30, 2016 by NORD
The Commissioner of the U.S. Food and Drug Administration, Robert Califf, M.D., will speak at NORD’s annual Rare Diseases & Orphan Products Breakthrough Summit in October. Commissioner Califf will provide …
Continue reading “FDA Commissioner Dr. Robert Califf to Speak at NORD Summit in October”
Read morePublished June 29, 2016 by NORD
Save the date for Sept. 21-22 for a nationwide day of action! Join NORD and 300+ partner organizations as we ‘rally’ for medical research as part of the annual Rally …
Continue reading “Register: Rally for Medical Research Hill Day 2016, Sept. 21-22”
Read morePublished June 23, 2016 by NORD
The complete agenda for the 2016 Rare Diseases & Orphan Products Breakthrough Summit is just around the corner! We’re excited to share with you all that we’ve been working on – here’s …
Continue reading “See What’s New and Exciting at the NORD 2016 Summit, Oct. 17-18!”
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