Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD …
Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited …
This past week, the National Organization for Rare Disorders (NORD) was named “charity of the week” by The Week magazine. Each charity featured in The Week has earned a four-star …
Meet Irelynn! She is 11 years old and was recently crowned Miss Pre-Teen Connecticut. Her platform for pageants is pancreatic cancer and she has been raising awareness for NORD’s member …
This blog post was written by Lisa Yue, Children’s Cardioymyopathy Foundation’s Founding Executive Director. When one thinks of heart disease, adults usually come to mind. The reality is children …
A few months ago, NORD and our members hosted a “Meet the Patients” event at the annual conference of the American Medical Student Association (AMSA). We were thrilled with the …
Next month, millions of Americans will tune in to watch the Miss America Pageant, airing live on ABC on September 13, 2015, from Atlantic City, New Jersey. We were excited …
