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June 11, 2020

TOPIC: Featured News, Patients & Members, Industry

2020 Rare Diseases & Orphan Products Breakthrough Summit Will Be a Virtual Event, Oct. 8-9

Posted at June 6, 2020 12:09 pm by Laura Mullen

We are at a pivotal time in rare disease, one that requires new approaches and fresh perspectives in order to achieve real progress. Given the impact of the COVID-19 pandemic on clinical trials, drug development, and pharmaceutical innovation, connecting stakeholders and advancing meaningful dialogue is now more critical than ever to improving the lives of over 25 million Americans… Read More

March 20, 2020

TOPIC: Featured News, Medical, Patients & Members, Industry, COVID-19

COVID-19 Resources for Non-profit Leaders and the Community

Posted at March 3, 2020 09:32 am by Valaree DonFrancesco

The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the coronavirus pandemic on all elements of our work including mission-critical… Read More

July 2, 2019

TOPIC: Featured News, Medical, Patients & Members, Advocacy, Industry, Sticky Posts for Homepage, Events, Get Involved

Registration Open for 2020 NORD Rare Summit

Posted at July 7, 2019 09:01 am by Lisa Sencen

The time is now

  • To address affordability for patients,
  • To drive progress with a unified voice,
  • To understand the role of advancing technology in rare disease, and
  • To register for the 2019 NORD Rare Summit!

In 2019, we believe The Time is Now to prioritize action in order to develop stronger resources, build better outcomes and find cures for the millions of Americans living with… Read More

May 7, 2019

TOPIC: Press Releases, Featured News, Patients & Members, Advocacy, Industry, Sticky Posts for Homepage

NORD Releases Principles for Assessing Proposals Designed to Lower the Cost of Prescription Drugs in the United States

Posted at May 5, 2019 09:42 am by Lisa Sencen

Washington, DC, May 7, 2019 – The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced its development of key drug pricing principles, created with the needs of the rare disease community in mind.

People living with rare diseases must be able to afford the therapies that… Read More

September 12, 2018

TOPIC: Featured News, Medical, Patients & Members, Research, Advocacy, Industry, Events, Get Involved

Three Big Reasons Not to Miss the 2018 NORD Rare Summit

Posted at September 9, 2018 04:35 pm by Lisa Sencen
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