July 2, 2019
Posted at July 7, 2019 09:01 am by Christina Jensen
The time is now…
- To address affordability for patients,
- To drive progress with a unified voice,
- To understand the role of advancing technology in rare disease, and
- To register for the 2019 NORD Rare Summit!
In 2019, we believe “The Time is Now“ to prioritize action in order to develop stronger resources, build better outcomes and find cures for the millions of Americans living with… Read More
May 7, 2019
NORD Releases Principles for Assessing Proposals Designed to Lower the Cost of Prescription Drugs in the United States
Posted at May 5, 2019 09:42 am by Christina Jensen
Washington, DC, May 7, 2019 – The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced its development of key drug pricing principles, created with the needs of the rare disease community in mind.
People living with rare diseases must be able to afford the therapies that… Read More
September 12, 2018
Posted at September 9, 2018 04:35 pm by Christina Jensen