Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day®. This is the one day that everyone comes together globally to bring attention to all 7,000 rare diseases that combined affect 30 million Americans–or 1 in 10 of us–and millions more around the world. NORD is proud to be the U.S…. Read More
March 1, 2016
TOPIC: Featured News, Medical, Patients & Members, Research, Industry
Posted at March 3, 2016 04:51 pm by Lisa Sencen
The Rare Neurological Disease Special Report™ was published on Rare Disease Day® in collaboration with the National Organization for Rare Disorders (NORD) as a supplement to the February 2016 issue of Neurology Reviews® (NR). This Special Report honors Rare Disease Day (February 29th, 2016) and is easily accessible at neurologyreviews.com.
The estimated 7,000 rare diseases, many of which… Read More
December 17, 2015
TOPIC: Press Releases, Featured News, Medical, Patients & Members, Research, Advocacy, Industry, Events, Patient Stories, Get Involved
Posted at December 12, 2015 10:15 am by Jennifer Huron
On February 29, millions of people worldwide will come together to raise awareness about rare diseases and their impact on patients’ lives. This is our day to be heard, so speak up and tell your elected officials about what it is like to live rare. Here are some ideas to get started…
State House… Read More
December 2, 2015
TOPIC: Featured News, Medical, Patients & Members, Research, Industry, Get Involved
Posted at December 12, 2015 02:43 pm by Mary Dunkle
Education has always been a key component of NORD’s mission and this year we expanded our outreach to two vitally important audiences – medical professionals and students preparing for health-related careers.
Today’s healthcare professionals are aware that… Read More