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NORD Rare Cancer Advocates Gather on Capitol Hill to Recognize Rare Cancer Day

Published September 23, 2026 by NORD

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Advocates Highlight Challenges Facing 1 in 4 Cancer Patients Diagnosed with a Rare Cancer WASHINGTON, D.C. and NORWELL, Mass., September 23, 2026 – Patients, caregivers, advocates, and clinicians joined the …

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Guest Blog: The Power of the Pack — New Rare Cancer Initiative Hopes Collaboration Will Lead to Cures

Published September 27, 2024 by NORD

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     By Susanna Ray It took doctors several years to figure out what was wrong with Karman Kahambwe. And no wonder: the Congolese-American teenager living in Eastern Washington had …

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Head of the Herd: Annie Achee, National Leiomyosarcoma Foundation (NLMSF)

Published August 30, 2022 by NORD

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Annie Achee is the President and Community Education/Research Liaison of the National Leiomyosarcoma Foundation (NLMSF). Leiomyosarcoma is a rare sarcoma (cancer) that originates in smooth tissue (including fat, muscle, nerves, …

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