Published February 28, 2018 by NORD
Listening Sessions to Enable Sharing Rare Disease Experiences with FDA Review Divisions Washington, D.C., February 28, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the …
Continue reading “NORD to Collaborate with FDA on Pilot Patient Engagement Activity”
Read morePublished January 16, 2018 by NORD
THE NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) LAUNCHES 7,000 MILE RARE MOVEMENT CHALLENGING AMERICANS TO CHART 7,000 MILES DURING MONTH OF FEBRUARY Americans to walk, bike or run 7,000 miles …
Continue reading “NORD Launches 7,000 Mile Rare Movement”
Read morePublished January 4, 2018 by NORD
January 4th Marks 35 Years of Helping People with Rare Diseases and the Beginning of a New, Year-Long Education and Awareness Campaign This year marks the 35th anniversaries of both …
Continue reading “NORD and the Orphan Drug Act Celebrate 35th Anniversaries”
Read morePublished November 28, 2017 by NORD
Patients speak out as Congress moves forward with a tax bill that would negatively impact individuals with rare diseases Washington, D.C., November 28, 2017 – Today, the National Organization for …
Continue reading “Rare Disease Advocates Host a Save the Orphan Drug Tax Credit Rally”
Read morePublished November 8, 2017 by NORD
Show your support for the Orphan Drug Tax Credit!
Read morePublished October 26, 2017 by NORD
View the full documentary. Danbury, C.T., October 26, 2017 – Imagine never being allowed to feel the sun on your skin. For 11-year-old Peyton, who is allergic to sunlight, that is …
Continue reading “NORD Releases New Documentary called “Good Morning Peyton””
Read morePublished October 17, 2017 by NORD
Orphan Drugs Account for Only 7.9% of Drug Spending in the U.S. Washington, D.C., October 17, 2017—Orphan drugs accounted for only 7.9% of total drug sales in the U.S. in 2016, …
Continue reading “New Study Examines Use and Cost of Orphan Drugs”
Read morePublished October 13, 2017 by NORD
Registration is now open for the 35th Anniversary Celebration Presenting the Rare Impact Awards.
Read morePublished October 10, 2017 by NORD
Danbury, CT, October 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization dedicated to helping the 30 million Americans with rare diseases, announces the appointment of …
Read morePublished September 19, 2017 by NORD
The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal …
Continue reading “NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan”
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