As a lead up to #RareDiseaseDay, NORD’s Education Senior Advisor Mary Dunkle was interviewed live on WFAN Sports Radio’s “Bob Salter Show” on Sunday, February 23. The 40 minute interview …
Tell us a little bit about yourself! Where are you from? My name is Viridiana Murillo, and I am from Pomona, California. I am a first-generation Mexican-American scientist and the …
BioNews Service reporter Larry Luxner attended the 2019 NORD Rare Diseases and Orphan Products Breakthrough Summit in Washington, DC in October, and has since written two articles based on Summit …
NORD has released a statement on today’s House Committee on Oversight and Reform’s Subcommittee on Civil Rights and Civil Liberties hearing on the Administration’s recent revocation of medical deferred action …
Singing has always been a big part of Mackenzie’s life. She auditioned for her school’s choir in seventh grade and continued singing throughout high school. But for a time, as …
Neena Nizar, founder and president of the nonprofit Jansen’s Foundation, a NORD Member, was interviewed at the Living Rare, Living Stronger NORD Patient and Family Forum by BioNews Service in …
Grant program established with gift from Retrophin Washington, DC and San Diego, May 20, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million …
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