Rare Disease News

NORD’s RareLaunch® Toolkit

Published March 8, 2021 by NORD

NORD’s Educational Support Program

Published February 9, 2021 by NORD

NORD State Report Card

Published January 27, 2021 by NORD

COVID-19 Vaccines Update

Published January 5, 2021 by NORD

Rare Disease Day Merch Now Available

Published December 10, 2020 by NORD

Krabbe Drug Development Meeting

Published November 2, 2020 by NORD

Head of the Herd: Lanie Etkind, Executive Director, Familial Dysautonomia Foundation

Published October 23, 2020 by NORD

At the Head of the Herd is… Lanie Etkind, Executive Director, Familial Dysautonomia Foundation Lanie advocates for those affected by… familial dysautonomia (FD) Lanie is located in… New York, NY …

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Interested in Forming a Foundation?

Published October 15, 2020 by NORD

Krabbe Virtual Meeting

Published August 10, 2020 by NORD