NORD Comments on CMS IFR on Community Engagement (Work) Requirements
Published: Jul 29, 2026
NORD on the Issues
Learn more about NORD's position on key issues that matter to you.
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For decades, NORD has pursued federal and state policies to improve the lives of Americans impacted by rare diseases. This page is updated daily to provide timely information on our policy efforts. Please contact [email protected] if you have questions or need additional information.
NORD Comments on CMS IFR on Community Engagement (Work) Requirements
Published: Jul 29, 2026
NORD Issues Position Statement: State Implementation of Medicaid Community Engagement Requirements (H.R.1)
Published: May 18, 2026
Tagged in: Access to Affordable, Adequate Coverage
Medicaid Engagement Requirements
Medicare, Medicaid, and Private Health Insurance Coverage
NORD Comments on FDA’s Proposed Plausible Mechanism Framework Guidance
Published: Apr 27, 2026
Tagged in: Access to Affordable Medicines
Access to Innovative Medicines and Therapies
Access to Pediatric Therapies
Advancing Rare Disease Research and Regulatory Science
Gene Therapies
Genetic Testing
Protecting FDA Standards for Safe and Effective Drugs
Rare Disease Clinical Trials
NORD letter in support of South Carolina Senate Bill 299 and South Carolina House Bill 3438
Published: Feb 3, 2017
Tagged in: Access to Affordable Medicines
Biosimilars
NORD letter in support of Nebraska Legislative Bill 481
Published: Feb 3, 2017
Tagged in: Access to Affordable Medicines
Biosimilars
NORD letter in support of Alaska Senate Bill 32
Published: Feb 3, 2017
Tagged in: Access to Affordable Medicines
Biosimilars
NORD letter in support of Kansas House Bill 2107
Published: Jan 24, 2017
Tagged in: Access to Affordable Medicines
Biosimilars
NORD letter in support of Montana House Bill 233
Published: Jan 18, 2017
Tagged in: Access to Affordable Medicines
Biosimilars
NORD comments to FDA on the Center for Devices and Radiological Health’s (CDRH) establishment of the Patient and Care-Partner Connection (P&CC)
Published: Jan 6, 2017
Tagged in: Access to Innovative Medicines and Therapies
Devices for Small Populations
NORD and EveryLife Foundation Outline 2 Technical Corrections to the IRA’s Orphan Drug Exclusion to Improve the Lives of Those Living with Rare Diseases
Published: Jan 1, 1970
Tagged in: Access to Affordable Medicines
Access to Affordable, Adequate Coverage
NORD Submits Comments on Docket No. NOT-AR-22-023; Request for Information on Themes for the NIAMS Strategic Plan for Fiscal Years 2025-2029
Published: Jan 1, 1970
Tagged in: Access to Affordable Medicines
Access to Affordable, Adequate Coverage
Access to Diagnostics
Access to Innovative Medicines and Therapies
Advancing Rare Disease Research and Regulatory Science
Public Health
Research
NORD Submits Letter of Support on A1825 (Conaway) An Act Establishing Certain Guidelines Concerning Step Therapy Protocols
Published: Jan 1, 1970
Tagged in: Access to Affordable Medicines
Access to Affordable, Adequate Coverage
NORD letter of thanks to Rep. Rob Nosse, sponsor of Oregon House Bill 2047, a bill to create a Rare Disease Advisory Council
Published: Jan 1, 1970
Tagged in: Rare Disease Advisory Councils (RDACs)
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