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Home / Patient Organizations / Patient Organizations
Project Alive
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Mucopolysaccharidosis Type II
https://rarediseases.org/es/organizations/project-alive/
Ver perfil >
Project Alive
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/project-alive-2/
Ver perfil >
Project Assist (Nevada)
Teléfono: 702-688-2819 Fax: 702-688-2558
https://rarediseases.org/es/organizations/project-assist-nevada/
Ver perfil >
Project CASK
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/project-cask/
Ver perfil >
Project DOCC – Delivery of Chronic Care
Teléfono: 516-829-0786 Correo electrónico: [email protected] Fax: 516-498-1899
https://rarediseases.org/es/organizations/project-docc-delivery-of-chronic-care/
Ver perfil >
Project FAVA
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de sobrecrecimiento asociado al gen PIK3CA
https://rarediseases.org/es/organizations/project-fava/
Ver perfil >
Project Sleep
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Narcolepsy
https://rarediseases.org/es/organizations/project-sleep/
Ver perfil >
Project Sunshine
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/project-sunshine/
Ver perfil >
Propionic Acidemia Foundation
Teléfono: 877-720-2192 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Propionic Acidemia
https://rarediseases.org/es/organizations/propionic-acidemia-foundation/
Ver perfil >
Prostate Cancer UK
Teléfono: 208-222-7622 Correo electrónico: [email protected] Fax: 208-222-7639
https://rarediseases.org/es/organizations/prostate-cancer-uk/
Ver perfil >
Prostate Pointers
https://rarediseases.org/es/organizations/prostate-pointers/
Ver perfil >
Proteus Syndrome Foundation
Teléfono: 901-756-9375 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Epidermal Nevus Syndromes, Síndrome de Proteus
https://rarediseases.org/es/organizations/proteus-syndrome-foundation/
Ver perfil >
Proyecto Pide un Deseo México, i.a.p.
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Enfermedad de Gaucher, Mucopolysaccharidosis Type II, Fabry Disease, ...
https://rarediseases.org/es/organizations/proyecto-pide-un-deseo-maxico-i-a-p/
Ver perfil >
PRP Alliance, Inc
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/prp-alliance-inc/
Ver perfil >
Prune Belly Mexico
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/prune-belly-mexico/
Ver perfil >
PSC Partners Seeking A Cure
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Primary Sclerosing Cholangitis, Ulcerative Colitis, PSC Partners Seeking A Cure ...
https://rarediseases.org/es/organizations/psc-partners-seeking-a-cure/
Ver perfil >
Pseudohypoaldosteronism Foundation
https://rarediseases.org/es/organizations/pseudohypoaldosteronism-foundation/
Ver perfil >
Psoriasis and Psoriatic Arthritis Alliance
Teléfono: 192-367-2837 Correo electrónico: [email protected] Fax: 192-368-2606
Enfermedades raras relacionadas: Psoriasis Pustulosa Generalizada
https://rarediseases.org/es/organizations/psoriasis-and-psoriatic-arthritis-alliance/
Ver perfil >
PTEN Hamartoma Tumor Syndrome Foundation
Miembro NORD
Teléfono: 256-520-8529 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Bannayan-Riley-Ruvalcaba Syndrome, PTEN Hamartoma Tumor Syndrome, Epidermal Nevus Syndromes, ...
https://rarediseases.org/es/organizations/pten-hamartoma-tumor-syndrome-foundation/
Ver perfil >
PTEN UK and Ireland Patient Group
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/pten-uk-and-ireland-patient-group/
Ver perfil >
PTEN World
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Bannayan-Riley-Ruvalcaba Syndrome, PTEN Hamartoma Tumor Syndrome
https://rarediseases.org/es/organizations/pten-world/
Ver perfil >
PTLS Hope Research Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ptls-hope-research-foundation/
Ver perfil >
Pull-Thru Network
Teléfono: 309-262-2930 Correo electrónico: [email protected]
Enfermedades raras relacionadas: Pediatric Crohn’s Disease, Hirschsprung Disease, Imperforate Anus, ...
https://rarediseases.org/es/organizations/pull-thru-network-2/
Ver perfil >
Pulmonary Alveolar Proteinosis Foundation
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Proteinosis alveolar pulmonar, Proteinosis Alveolar Pulmonar Autoinmune
https://rarediseases.org/es/organizations/pap-foundation/
Ver perfil >
Pulmonary Fibrosis Foundation (PFF)
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Idiopathic Pulmonary Fibrosis, Alveolitis alérgica extrínseca
https://rarediseases.org/es/organizations/pulmonary-fibrosis-foundation-pff/
Ver perfil >
Pulmonary Hypertension Association
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Hipertensión arterial pulmonar
https://rarediseases.org/es/organizations/pulmonary-hypertension-association/
Ver perfil >
Pura Syndrome Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/pura-syndrome-foundation/
Ver perfil >
Purposeful Visions
https://rarediseases.org/es/organizations/purposeful-visions/
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PVNH Support & Awareness
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/pvnh-support-awareness/
Ver perfil >
PWN4PWN Corp
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/pwn4pwn-corp/
Ver perfil >
Pwsa | Usa
https://rarediseases.org/es/organizations/pwsa-usa/
Ver perfil >
PXE International, Inc.
Teléfono: 202-362-9599 Correo electrónico: [email protected] Fax: 202-966-8553
Enfermedades raras relacionadas: Inherited Pseudoxanthoma Elasticum
https://rarediseases.org/es/organizations/pxe-international-inc/
Ver perfil >
Pyruvate Kinase Deficiency Group
https://rarediseases.org/es/organizations/pyruvate-kinase-deficiency-group/
Ver perfil >
Pyruvate Kinase Deficiency International Alliance
Miembro NORD
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Pyruvate Kinase Deficiency
https://rarediseases.org/es/organizations/pyruvate-kinase-deficiency-international-alliance/
Ver perfil >
R.O.C.K. (Raising Our Celiac Kids)
Teléfono: 858-395-5421 Correo electrónico: [email protected] Fax: 858-756-0431
Enfermedades raras relacionadas: Celiac Disease
https://rarediseases.org/es/organizations/r-o-c-k-raising-our-celiac-kids/
Ver perfil >
RADAR – The Disability Network
Teléfono: 207-250-3222 Correo electrónico: [email protected] Fax: 870-141-0337
https://rarediseases.org/es/organizations/radar-the-disability-network/
Ver perfil >
Raiden Science Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: developmental and epileptic encephalopathy, 44, spinocerebellar ataxia, autosomal recessive 24
https://rarediseases.org/es/organizations/raiden-science-foundation/
Ver perfil >
Ramon Brugada Senior Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Brugada
https://rarediseases.org/es/organizations/ramon-brugada-senior-foundation/
Ver perfil >
Ramsay Hunt Syndrome Foundation
Correo electrónico: [email protected]
Enfermedades raras relacionadas: Síndrome de Ramsay Hunt
https://rarediseases.org/es/organizations/ramsay-hunt-syndrome-foundation/
Ver perfil >
Ramsay Hunt Syndrome Foundation
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/ramsay-hunt-syndrome-foundation-2/
Ver perfil >
Rare & Undiagnosed Network (RUN)
Miembro NORD
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/rare-undiagnosed-network-run/
Ver perfil >
Rare and Chronic Diseases Foundation
https://rarediseases.org/es/organizations/rare-and-chronic-diseases-foundation/
Ver perfil >
Rare Birds Foundation
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/rare-birds-foundation/
Ver perfil >
Rare Bleeding Disorders Database (RBDD)
https://rarediseases.org/es/organizations/rare-bleeding-disorders-database-rbdd/
Ver perfil >
Rare Cancer Alliance
Enfermedades raras relacionadas: Bannayan-Riley-Ruvalcaba Syndrome, Leiomiomatosis hereditaria y carcinoma de células renales, Blastoma pleuropulmonar, ...
https://rarediseases.org/es/organizations/rare-cancer-alliance/
Ver perfil >
Rare Cancer Genome Consortium
https://rarediseases.org/es/organizations/rare-cancer-genome-consortium/
Ver perfil >
Rare Cancer Research Foundation (RCRF)
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/rare-cancer-research-foundation-rcrf/
Ver perfil >
Rare Disease Ghana Initiative
https://rarediseases.org/es/organizations/rare-disease-ghana-initiative/
Ver perfil >
Rare Disease UK
Correo electrónico: [email protected]
https://rarediseases.org/es/organizations/rare-disease-uk/
Ver perfil >
Rare Diseases Clinical Research Network
Enfermedades raras relacionadas: Severe Combined Immunodeficiency, Dent Disease
https://rarediseases.org/es/organizations/rare-diseases-clinical-research-network/
Ver perfil >
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