Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/pink-rocki-advocacy-foundation/
Enfermedades raras relacionadas:
Pitt-Hopkins Syndrome
https://rarediseases.org/es/organizations/pitt-hopkins-research-foundation/
Enfermedades raras relacionadas:
Craniopharyngioma, Froehlich Syndrome, Multiple Endocrine Neoplasia Type 1, ...
https://rarediseases.org/es/organizations/pituitary-foundation/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Craniopharyngioma, Sheehan Syndrome, Empty Sella Syndrome, ...
https://rarediseases.org/es/organizations/pituitary-network-association/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Autosomal Recessive Polycystic Kidney Disease
https://rarediseases.org/es/organizations/pkd-foundation-polycystic-kidney-disease/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pallister Killian Mosaic Syndrome
https://rarediseases.org/es/organizations/pks-kids/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/plan-for-rare-foundation/
Enfermedades raras relacionadas:
Cerebral Palsy, Multiple Sclerosis
https://rarediseases.org/es/organizations/plan-institute-for-caring-citizenship/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Congenital Type 1 Plasminogen Deficiency
https://rarediseases.org/es/organizations/plasminogen-deficiency-foundation/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
May Hegglin Anomaly, Henoch-Schönlein Purpura, Immune Thrombocytopenia, ...
https://rarediseases.org/es/organizations/platelet-disorder-support-association/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Craniopharyngioma, Glioma, Juvenile Pilocytic Astrocytoma, ...
https://rarediseases.org/es/organizations/plga-foundation/
Enfermedades raras relacionadas:
Pelizaeus-Merzbacher Disease
https://rarediseases.org/es/organizations/pmd-family-support/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pelizaeus-Merzbacher Disease
https://rarediseases.org/es/organizations/pmd-foundation/
Miembro NORD
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/pmd-foundation-2/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/pmg-awareness-organization-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Pelizaeus-Merzbacher Disease
https://rarediseases.org/es/organizations/pmld-support-group/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Goblet Cell Adenocarcinoma, Appendiceal Cancer and Tumors, Mesothelioma, ...
https://rarediseases.org/es/organizations/pmp-pals-network/
Correo electrónico:
[email protected]
Fax: 888-582-9993
https://rarediseases.org/es/organizations/pnh-research-and-support-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/pompe-alliance/
Enfermedades raras relacionadas:
Pompe Disease, Enfermedad de Pompe
https://rarediseases.org/es/organizations/pompe-support-network/
Enfermedades raras relacionadas:
Post Polio Syndrome
https://rarediseases.org/es/organizations/post-polio-health-international/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/potentials-foundation-inc/
Teléfono:
214-435-8288
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/potocki-lupski-syndrome-outreach-foundation-inc/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Prader-Willi Syndrome, Síndrome de Prader-Willi
https://rarediseases.org/es/organizations/prader-willi-france/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Prader-Willi Syndrome, Síndrome de Prader-Willi
https://rarediseases.org/es/organizations/prader-willi-syndrome-association-uk/
Miembro NORD
Teléfono:
941-312-0400
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Prader-Willi Syndrome, Síndrome de Prader-Willi
https://rarediseases.org/es/organizations/prader-willi-syndrome-association-usa/
Enfermedades raras relacionadas:
Congenital Fibrosis of the Extraocular Muscles, Bardet-Biedl Syndrome, Chandler’s Syndrome, ...
https://rarediseases.org/es/organizations/prevent-blindness-america/
Teléfono:
281-997-1516
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Primary Biliary Cholangitis
https://rarediseases.org/es/organizations/primary-biliary-cholangitis-organization/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Primary Ciliary Dyskinesia, Discinesia ciliar primaria
https://rarediseases.org/es/organizations/primary-ciliary-dyskinesia-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Gerstmann-Sträussler-Scheinker Disease, Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, ...
https://rarediseases.org/es/organizations/prion-alliance/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Smith-Magenis Syndrome
https://rarediseases.org/es/organizations/prisms-parents-researchers-interested-in-smith-magenis-syndrome/
Miembro NORD
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Mulvihill-Smith Syndrome, Mandibuloacral Dysplasia, Wiedemann-Rautenstrauch Syndrome, ...
https://rarediseases.org/es/organizations/progeria-research-foundation/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
MDR3 Deficiency, Low Gamma-GT Familial Intrahepatic Cholestasis, Deficiencia de MDR3 ...
https://rarediseases.org/es/organizations/progressive-familial-intrahepatic-cholestasis-advocacy-and-resource-network/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Low Gamma-GT Familial Intrahepatic Cholestasis, MDR3 Deficiency, Deficiencia de MDR3 ...
https://rarediseases.org/es/organizations/progressive-familial-intrahepatic-cholestasis-web-group/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Progressive Osseous Heteroplasia, Fibrodysplasia Ossificans Progressiva
https://rarediseases.org/es/organizations/progressive-osseous-heteroplasia-association/
Correo electrónico:
[email protected]
Fax: 132-732-2412
Enfermedades raras relacionadas:
Progressive Supranuclear Palsy
https://rarediseases.org/es/organizations/progressive-supranuclear-palsy-association-uk/
Miembro NORD
Teléfono:
929-269-6801
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Chromosome 8, Monosomy 8p
https://rarediseases.org/es/organizations/project-8p-foundation/
Correo electrónico:
[email protected]
https://rarediseases.org/es/organizations/project-8p-foundation-2/
Correo electrónico:
[email protected]
Enfermedades raras relacionadas:
Mucopolysaccharidosis Type II
https://rarediseases.org/es/organizations/project-alive/
