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Webinar Series

NORD ‘s free webinar series address issues of importance to the rare disease community.  Frequent topics include issues related to legislation, partnering with government agencies, capacity building, access issues, drug development, and more.  Our speakers and presenters are thought leaders and represent key stakeholder groups, including government, industry, medical professionals, and patient advocacy.  We encourage interaction between presenters and participants.


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Upcoming Webinars & Conference Calls


Congressional Directed Medical Research Programs

July 2018

Managing a Medical Advisory Board: Basics to Advance

September 2018

Conference Calls

On the first Wednesday of every even-numbered month, NORD hosts Members-Only bi-monthly calls to update our member organizations on urgent NORD initiatives and important rare disease-related activities. From Federal Policy to cutting-edge medical campaigns at NORD, we brief the Member Organizations on the current and important news for their leadership and constituents.

Your organization leadership, staff and Board members are welcome to join the call. We send out recordings of these 30 to 60 minute meetings after the call.


Wednesday, October 3, 1:00 p.m. EST

Wednesday, December 5, 1:00 p.m. EST

*Dates are subject to change*


Value of Membership

These opportunities are available as a benefit to NORD member organizations
Take advantage of these opportunities by applying for membership today!

Previous Webinars


About NORD
January 2017 

ICD-10 Codes and Applications (view recording)
March 2017

Physician Education and Continuing Medical Education (CME)
July 2017 

Free Promotion of Your Events and Disease Awareness
September 2017

Federal Policy on Access and Reimbursement Issues
November 2017


Ad-Hoc Webinars

The following webinars were special additions; Dr. Austin was an exclusive guest who answered members’ questions, and Peter Saltonstall explained a new report released by NORD in mid-October.

The National Center for Advancing Translational Sciences: Catalyzing Translational Innovation in Rare Disease Research
Speaker: Christopher Austin, MD, Director, NCATS, NIH
August 2017

NORD CEO Talk on Analyzing Orphan Drug Use and Cost: QuintilesIMS Study
Speaker: Peter L. Saltonstall, President and CEO, NORD
November 2017