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2 events,2026 Global Patient Unmet Needs Assessment is open! @MPNResearch Foundation invites individuals living with a myeloproliferative neoplasm (MPN) to participate in the 2026 Global Patient Unmet Needs Assessment. Your insights help guide … Continue reading "MPN Research Foundation Global Patient Unmet Needs Assessment" Rare Cancer Coalition at ASCO! May 29 – June 2, Chicago, IL The Rare Cancer Coalition will have a booth in the Patient Advocacy Pavilion at the American Society of … |
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Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk … Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday" |
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2 events,National PKU Alliance (NPKUA) supports an annual grant program to fund the most critical projects working to improve the lives of individuals with PKU. The 2026-2027 NPKUA Grant Program is … |
2 events,NORD member @United Mitochondrial Disease Foundation's Mitochondrial Medicine Conference 2026 -- June 17-20 in Orlando -- brings together families and global leaders, scientists, and clinicians for four days of cutting-edge … |
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers … Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings" |
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2 events,
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Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk … Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday" |
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