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1 event,2026 Global Patient Unmet Needs Assessment is open! @MPNResearch Foundation invites individuals living with a myeloproliferative neoplasm (MPN) to participate in the 2026 Global Patient Unmet Needs Assessment. Your insights help guide … Continue reading "MPN Research Foundation Global Patient Unmet Needs Assessment" |
2 events,NORD's free virtual event for Spanish-speaking rare disease patients and families (October 3) Registration is now open for NORD’s first #LivingRare virtual event entirely in Spanish! https://bit.ly/4i6JPzG Join us Saturday, … Continue reading "Living Rare Living Stronger – Virtual Spanish Session October 3rd" |
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Ya está abierta la inscripción para el primer evento virtual #LivingRare de NORD, completamente en español! 🎉 https://bit.ly/4i6JPzG Únase a nosotros el sábado 3 de octubre, del mediodía a las … Continue reading "Living Rare Living Stronger – Sesión virtual de español 3 de octubre"
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Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk … Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday" Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open … Continue reading "Pericarditis Alliance – Shares From the Collective hosted by Lisa" |
2 events,Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open … Continue reading "Pericarditis Alliance Support Groups – Pericarditis Under 30 hosted by Alexa" |
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Join the International Pemphigus and Pemphigoid Foundation on Monday, October 5th at 11:00 AM - 12:15 PM EST/ Central European Time: 5:00 PM - 6:15 PM (17:00 - 18:15) for … Continue reading "Scientific Seminar – International Pemphigus and Pemphigoid Foundation" |
3 events,The Charcot-Marie-Tooth Association (CMTA) will host its 2026 Patient and Research Summit on October 9-10, 2026, at the Grand Bay Hotel San Francisco, 223 Twin Dolphin Dr., Redwood City, CA … The Charcot-Marie-Tooth Association (CMTA) 2026 Patient & Research Summit brings together people living with Charcot-Marie-Tooth disease (CMT), caregivers, researchers, clinicians, and industry partners for two days of education and community. … Continue reading "Charcot-Marie-Tooth Association (CMTA) 2026 Patient & Research Summit" |
5 events,The Pulmonary Hypertension Wellness Expo is PHA's newest free, educational event for the PH community. The PH Wellness Expo is set for Saturday, Oct. 10, from 11 a.m. to 3 …
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Join the IPPF for their next IN PERSON Pacific Northwest Support Group Meeting on October 10th at the Seattle Public Library. Living with pemphigus or pemphigoid is hard enough, but … Continue reading "IPPF Pacific Northwest Support Group Meeting" |
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2 events,Join Cure HHT in Cape Cod, October 12-16, 2026, as breakthroughs set sail at the 16th HHT International Scientific Conference. Together, we'll explore the latest advances in HHT research, diagnosis, … Continue reading "Cure HHT International Scientific Conference" |
3 events,
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Join the IPPF for their next Tri-State New York Virtual Support Group on Wednesday October 14, 2026 • 6:30 pm - 8:30 pm (EST). Living with pemphigus or pemphigoid is … Continue reading "IPPFTri-State New York Virtual Support Group" |
4 events,"Siegel Rare Neuroimmune Association A three-day hybrid (in-person and online) educational event for those with acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum … Continue reading "2026RNDS October 15 – 17 2026, Hybrid Conference" The Sickle Cell Disease Association of America Inc., a national nonprofit organization that advocates for people affected by sickle cell disease, will hold its 54th annual national convention Thursday, Oct. … Continue reading "Sickle Cell Disease Association of America at the 54th Annual National Convention" |
4 events,
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers … Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings" |
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10th Annual Food Fight for Scleroderma Date: Thursday, October 29, 2026 Time: 6:00–9:00 p.m. | First Bite VIP begins at 5:30 p.m. Location: Mile High Station, 2027 W. Colfax Ave., … |
3 events,The Abbey Meyers Khushi Bridging Rare Awards & Gala 2026, hosted by IndoUSrare, is a fundraising gala dedicated to supporting our mission and creating greater opportunities for the rare disease … Continue reading "Abbey Meyers Khushi Bridging Rare Awards & Gala 2026" Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open … Continue reading "Pericarditis Alliance Support Groups – Pericarditis Under 30 hosted by Alexa" |
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