Membership Webinar Series

NORD hosts monthly webinars for member organizations. We feature topics frequently requested by members, including research collaboration, event planning and best practices for engaging your board. In addition to these regularly scheduled webinars, there are occasionally special webinars added to the schedule with an important topic and/or guest.

Do you have a suggestion of a webinar? Contact NORD’s Membership team.

Past Webinars

Month Topic
May 2021 Grow and Diversify Your Board: When, Why and How
March 2021 RareLaunch Resource: Creating Your Medical Advisory Board
February 2021 Diversity, Equity, and Inclusion in Action: Case Studies from NORD’s Rare Cancer Coalition®
January 2021 Hosting Events Amid the Pandemic: Live and Virtual Tips
December 2020 Policy Team Power Hour
November 2020 Election Results and Rare Diseases: What’s on the Horizon
September 2020 Rare Diseases, COVID-19 and Voting Safely this Fall
July 2020 Building a Village: How to Re-Engage Your Board Members, Leaders and Volunteers
June 2020 Crisis Communications: COVID-19 and the Future
June 2020 Fundraising in a Pandemic
June 2020 Considerations when Transitioning to Virtual Events
May 2020 What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform
March 2020 CDMRP – Department of Defense Funding for Rare Disease
March 2020 Building Your Case: Fundraising for Your Organization
November 2019 Fundraising: Activate your Board
September 2019 Grant Writing for Rare Diseases
July 2019 Increase Donations with Financial Transparency
May 2019 FDA Request to Connect Online Portal
March 2019 Maximizing Your Impact with BoardSource
January 2019 The Cost of Rare Disease Drugs
December 2018 FDA Patient-Focused Drug Development
October 2018 ICD-10 Codes
July 2018 DOD Funding for Your Rare Disease Research
May 2018 Board Management
March 2018 Fundraising
January 2018 Rare Disease Day 2018
November 2017 Federal Policy on Access and Reimbursement Issues
September 2017 Free Promotion of Your Events and Disease Awareness!
July 2017 Physician Education and Continuing Medical Education (CME)
May 2017 Natural History Studies & Patient Registries
March 2017 ICD-10 Codes and Applications

Special Ad-Hoc Webinars

Month Topic Presenter
August 2017 The National Center for Advancing Translational Sciences: Catalyzing Translational Innovation in Rare Disease Research Christopher Austin, MD, Director, NCATS, NIH
November 2017 NORD CEO Talk on Analyzing Orphan Drug Use and Cost: Quintiles Study Peter Saltonstall, President and CEO
April 2018 PCORI Funding Eleanor Perfetto, PhD, MS, Senior VP of Strategic Initiatives for the NHC
July 2017 Physician Education and Continuing Medical Education (CME)