NORD’s Leadership Team

NORD is uniquely focused on purposefully elevating care, advancing research, and driving policy for the 30 million Americans living with rare diseases and their families. We have a long-standing and firmly rooted position in the rare disease community, based on nearly 40 years of positive impact, fueled by the breadth and depth of our experience and expertise.

We provide mentorship, education, and support to more than 300 disease-specific patient organizations, more than 15,000 individual advocates, as well as millions of individuals in the community.