NORD’s Leadership Team

NORD is uniquely focused on purposefully elevating care, advancing research, and driving policy for the 30 million Americans living with rare diseases and their families. We have a long-standing and firmly rooted position in the rare disease community, based on nearly 40 years of positive impact, fueled by the breadth and depth of our experience and expertise.

We provide mentorship, education, and support to more than 300 disease-specific patient organizations, more than 15,000 individual advocates, as well as millions of individuals in the community.

Peter head
Peter L. Saltonstall

President and Chief Executive Officer

Pam web
Pamela Gavin

Executive Vice President


Ed head
Edward Neilan, M.D., Ph.D.

Chief Medical and Scientific Officer

Rebecca head
Rebecca Aune

Director of Education Programs

Debbie head
Debbie Drell

Senior Director of Membership Services

Aliza head
Aliza Fink

Director of Research Programs

Prashant head
Prashant Goel

Vice President of Information Technology

Karin head
Karin Hoelzer

Director of Policy and Regulatory Affairs

Jen head
Jennifer Huron

Director of Community Relations

Neeta web
Neeta Kotecha

Vice President of Finance

Alexa Moore

Vice President of Development

Jill head
Jill L. Pollander, RN, MSN

Vice President of Patient Services

Heidi head
Heidi Ross

Vice President of Policy and Regulatory Affairs

Lisa head
Lisa (Phelps) Sarfaty

Vice President of Community Engagement

Norine head
Norine Schwarzchild

Vice President of Human Resources