For nearly 40 years, NORD has been a national leader in voicing the needs of the rare disease community, driving federal and local policies, advancing medical research, raising awareness among key stakeholders and the general public, and providing health and family services for those who need them most.
With the support of the rare disease community, partners, stakeholders, and donors, we are ever-growing and innovative – to match the growing needs of the over 25 million people living with a rare disease in the United States.
No one should deal with a rare disease alone. With NORD in your corner, you will never be alone.