Board of Directors

The NORD Board of Directors includes representatives of NORD Member Organizations as well as individuals who have demonstrated leadership in serving the rare disease patient community.

Kay Holcombe MS, Chair Senior Advisor, Milken Institute Board, Critical Path Institute	Susan A. Berry, MD University of Minnesota Medical School
Dennis Jackman, MBA, Vice Chair Independent Board and Organizational Consultant	Tom Kelly UnitedHealth Group (retired)
Shafali Spurling Jeste, MD Children’s Hospital Los Angeles USC Keck School of Medicine	Jim Palma, Secretary TargetCancer Foundation
Phillip L. Pearl, MD Boston Children's Hospital	Mike Porath The Mighty
Pamela Gavin National Organization for Rare Disorders	Sheldon Schuster, Ph.D. Keck Graduate Institute of Applied Health Sciences
Mark Skinner, JD Institute for Policy Advancement	Lorna Weir, JD Elevate Healthcare