Board of Directors
The NORD Board of Directors includes representatives of NORD Member Organizations as well as individuals who have demonstrated leadership in serving the rare disease patient community.
Kay Holcombe MS, ChairSenior Advisor, Milken Institute Board, Critical Path Institute | Steven A. GrossmanHPS Group, LLC |
Susan A. Berry, MDUniversity of Minnesota | Leon Eidelman, CFAJP Morgan Chase & Co. |
Susan HedstromFoundation for Prader-Willi Research | Dennis Jackman, MBA, Vice ChairIndependent Board and Organizational Consultant |
Shafali Spurling Jeste, MDChildren’s Hospital Los AngelesUSC Keck School of Medicine | Jim Palma, SecretaryTargetCancer Foundation |
Phillip L. Pearl, MDBoston Children's Hospital | Mike PorathThe Mighty |
Peter L. SaltonstallNational Organization for Rare Disorders | Mark Skinner, JDInstitute for Policy Advancement |