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Apr. 9, 2019

TOPIC: Events, Featured News, Get Involved, Patients & Members

Living Rare, Living Stronger full agenda with speakers now available

Posted by Lisa Sencen

The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to take advantage of early bird pricing! Need more enticing?

Here are 10 reasons to attend Living Rare, Living Stronger: 

  • Have fun: Family BBQ on Friday night to kick off the weekend, Texas style
  • Make connections: The medical community and students + rare disease patients = a brighter future
  • Rare disease life hacks: Lots of practical tips for patients on living their best lives with rare diseases
  • Caregivers need life hacks too: Advice for caregivers on mental health, family relationships and more
  • A customizable experience: Four tracks on topics like drug development, stress management, psychology, government services and much more
  • Medical knowledge: The latest on treating patients, diagnostic delays, genetic testing, gene therapy and career/funding opportunities
  • Get fancy and celebrate progress: The Rare Impact Awards celebrates those making a difference in rare disease and will take place at Space Center Houston on Saturday night
  • Relax and heal: A dedicated wellness room with yoga and other activities for recharging and unwinding
  • Wake up and be inspired: Breakfast on Saturday featuring stories of hope when doctors and patients collaborate
  • Have some hope to go: Bon voyage brunch on Sunday with a last word on what’s on the horizon for rare disease