Members-Only Information Submission

As a benefit to member organizations of NORD, we are happy to help publicize your organization’s information including upcoming events, new resources on the disease-state you serve, job postings, etc. NORD may be able to share your information on its website that reaches more than one million people per month, in our monthly eNewsletter that reaches over 30,000 people, on our social media, and more!Use the form below to share your information with us!

  • Please provide the name, title, and email address for NORD's main point of contact for the organization.
  • What type of information are you requesting NORD to share through its communications channels?
  • Please provide a brief overview on this information that you would like NORD to share so that we can get a better understanding of what may be shared through our communications channels.
  • **We will do our best to share your information on this date, but cannot guarantee it.**
  • When NORD promotes your programs/news in our e-Newsletter, we would like to help our readers better understand your organization’s disease state. If your submission is included in our eNewsletter, we may also include a brief description of your disease(s) and link to our Rare Disease Report for more information. Please email if you have any questions.