Additional Resources

Section

NORD rare disease drug development ad.

Get Information about a Rare Disease

Use the form below to explore NORD's comprehensive rare disease database. Search for detailed information on rare diseases, including NORD's authoritative Rare Disease Reports and data from other reliable sources.
* = NORD Rare Disease Report

Interested in exploring the database in detail?
Click here to explore the database in alphabetical order.

pineoblastoma

The information provided on this page is for informational purposes only. The National Organization for Rare Disorders (NORD) does not endorse the information presented. The content has been gathered in partnership with the MONDO Disease Ontology. Please consult with a healthcare professional for medical advice and treatment.

Print

Disease Overview

Pineoblastoma is a rare, malignant type of supratentorial primitive neuroectodermal tumor (sPNET), found mainly in children (less than 10% of cases are reported in adults), and located in the pineal region of the brain but that can metastasize along the neuroaxis. As it is the most aggressive of the pineal parenchymal tumors, it is usually associated with a poor prognosis.

Synonyms

  • PNET of pineal gland
  • PNET of the pineal gland
  • pineal PNET
  • pineal gland PNET
  • pineal gland primitive neuroectodermal neoplasm
  • pineal gland primitive neuroectodermal tumor
  • pineal gland primitive neuroectodermal tumour
  • pineal primitive neuroectodermal neoplasm
  • pineal primitive neuroectodermal tumor
  • pineal primitive neuroectodermal tumour
  • pineoblastoma
  • pineoblastoma (WHO grade IV)
  • pineoblastoma, malignant
  • primitive neuroectodermal neoplasm of pineal gland
  • primitive neuroectodermal neoplasm of the pineal gland
  • primitive neuroectodermal tumor of pineal gland
  • primitive neuroectodermal tumor of the pineal gland
  • primitive neuroectodermal tumour of pineal gland
  • primitive neuroectodermal tumour of the pineal gland
GARD Disease Summary

The Genetic and Rare Diseases Information Center (GARD) has information and resources for patients, caregivers, and families that may be helpful before and after diagnosis of this condition. GARD is a program of the National Center for Advancing Translational Sciences (NCATS), part of the National Institutes of Health (NIH).

View report
Orphanet

Orphanet has a summary about this condition that may include information on the diagnosis, care, and treatment as well as other resources. Some of the information and resources are available in languages other than English. The summary may include medical terms, so we encourage you to share and discuss this information with your doctor. Orphanet is the French National Institute for Health and Medical Research and the Health Programme of the European Union.

View report
Sign Up for NORD News