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February 28, 2015

TOPIC: Uncategorized

Today is Rare Disease Day 2015

Posted by Christina Jensen

Rare Disease Day is here!  Celebrated on the last day of February–the rarest day on the calendar–this is the one day every year when the world comes together to improve the lives of people living with rare diseases.

NORD is proud to work with our partners as the official sponsor of Rare Disease Day in the U.S.  Here are a… Read More

February 16, 2015

TOPIC: Uncategorized

Join NORD to Celebrate Rare Disease Day

Posted by Christina Jensen
In celebration of Rare Disease Day, NORD is excited to host a special event for the rare disease community that includes a screening of the new documentary, “Banner on the Moon,” about Cindy Abbott and narrated by Valerie Harper.

Join us in D.C. for a reception and to see this inspiring story about love and determination.  Space is limited – Read More

February 16, 2015

TOPIC: Uncategorized

Advancing Research: NORD Partners with Lundbeck for 6th Raise Your Hand Campaign

Posted by Christina Jensen

For the sixth year, we’re proudly partnering with the pharmaceutical company Lundbeck on the “Raise Your Hand to Fight Rare Diseases” campaign, which supports rare disease research in celebration of Rare Disease Day.

The campaign invites individuals to visit the Rare Disease Day U.S. website, http://rarediseaseday.us, and click on the “Raise Your Hand” icon during the month of February. Each unique click… Read More

February 15, 2015

TOPIC: Uncategorized

Partnering with Hemophilia Federation of America for Rare Disease Day and Hemophilia Awareness Month

Posted by Christina Jensen

The bleeding disorders community will be recognizing Rare Disease Day on February 28, Hemophilia Awareness Month during the entire month of March, and World Hemophilia Day of April 17. These important dates were created to raise awareness and education about rare conditions like hemophilia and bleeding disorders.

NORD is thrilled to partner with our member organization, Hemophilia Federation… Read More