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March 17, 2016

TOPIC: Press Releases, Featured News, Events

NORD Announces 2016 Rare Impact Award Recipients to be Honored on May 17

Posted by Jennifer Huron

Feat ImageContinuing its annual tradition of recognizing the people, organizations, advocates and companies who are making a difference in the fight against rare diseases, the National Organization for Rare Disorders (NORD)® announces the 2016 Rare Impact Award recipients to be honored on May 17.

In its inaugural year, the Rare… Read More

March 15, 2016

TOPIC: Press Releases, Events, Get Involved

Running for Rare Named an Official Charity Partner of the 2016 TCS New York City Marathon Set for Sunday, November 6, 2016

Posted by Jennifer Huron

running4rare_NORDRunning for Rare was named an Official Charity Partner of the 2016 TCS New York City Marathon, it was announced today by the National Organization for Rare Disorders (NORD). The race will take place on Sunday, November 6, 2016.

“Running for Rare is thrilled to partner… Read More

March 11, 2016

TOPIC: Press Releases, Events, Get Involved

Running for Rare Marathon Team Expands Under NORD

Posted by Jennifer Huron

running4rare_NORDThe Running for Rare marathon team will expand under new governance with the National Organization for Rare Disorders (NORD), the leading independent nonprofit representing all people with rare diseases and disorders. NORD will take over the program, which uses running as a platform to raise awareness and support for… Read More

March 4, 2016

TOPIC: Patients & Members, Events

Apply Now: The Hole in the Wall Gang Camp Hosts First-Ever Rare Disease Family Camp

Posted by Jennifer Huron

holeinwallgang1NORD is proud to be working with The Hole in the Wall Gang Camp on the first-ever rare disease Family Camp here in Connecticut, June 2-5, 2016.

The Hole in the Wall Gang Camp opens its doors to children and families to ensure that every child, no matter their illness, can experience… Read More