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November 5, 2014

TOPIC: Advocacy, Featured News, Patients & Members, Research

Multiple Endocrine Neoplasia Type 1: One Family’s Fight

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Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer… Read More

October 7, 2014

TOPIC: Advocacy, Featured News, Medical, Patients & Members, Research

Taking Action for ACD

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On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. “Around midnight on the day of my son’s birth, my husband and… Read More

September 16, 2014

TOPIC: Advocacy, Featured News, Industry, Medical, Patients & Members, Research

Living with Blood Cancer

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Editor’s note: The following blog is being published to highlight Blood Cancer Awareness Month and MPN Awareness Day.  

I was diagnosed with essential thrombocythemia (ET) at age 16 after collapsing in my high school cafeteria. At that time, lab results showed I had a platelet count of over 1 million and my world was forever changed. During the last… Read More