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Mar. 16, 2020

TOPIC: Featured News, Events

NORD Announces Important Update Regarding the 2020 Living Rare Forum

Posted by Valaree DonFrancesco


The health and safety of the rare disease community is always our top priority at NORD. With that in mind, the Living Rare, Living Stronger NORD Patient and Family Forum will no longer be held on May 14 -16. 

We know how valuable it is for those with rare diseases to come together in person to gain strength from both our shared and unique experiences. We look forward to hosting this event at a later date to ensure the welfare of patients, caregivers, health care professionals and medical students.


Please save the date for a tentative reschedule of the 2020 Living Rare Forum:

July 18-20
The Renaissance Cleveland Hotel
24 Public Square
Cleveland, Ohio

Featuring the Rare Impact Awards hosted at the Rock & Roll Hall of Fame


These dates may be subject to change as further information becomes available on the current coronavirus pandemic. NORD will continue to follow this crisis with our rare community in mind.

We encourage you to continue to stay vigilant in following the CDC’s recommendations to limit the spread of the virus as well as to be up to date with any guidance shared by your local health department. You can read a summary of those recommendations on our blog.


If you have already registered and/or booked a hotel room for this event, we will be in touch with further information in the coming days. Thank you for your patience.