RareCare®

NORD’s Patient Assistance Programs


NORD Supports Rare Disease Patients Impacted by California Wildfires

If you or a loved one have a rare disorder and have been impacted by the LA fires, you may be eligible for relief through NORD’s Natural Disaster & Hurricane Emergency Relief Program. This relief may be used for:

  • Short-term emergency lodging
  • Limited home repairs
  • Auto repair or short-term car rental
  • Other needs considered on a case-by-case basis

Click here to apply for assistance or email [email protected].

For more information on NORD’s Natural Disaster & Hurricane Emergency Relief Patient Assistance Program, click here.

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Amyloidosis Medical Assistance
Temporarily Waitlisting
Phone: 203-616-4325 Fax: 203-267-0847
Resource(s): PAP_Amyloidosis
Amyloidosis Premium Copay Assistance
Temporarily Waitlisting
Phone: 203-616-4325 Fax: 203-267-0847
Resource(s): PAP_Amyloidosis
AT-01 Phase 3 Imaging Study
Referral Required
Phone: 475-365-6400 Fax: 475-470-8977
Resource(s): AT01-301 Phase 3 Imaging Agent Study_flyer 12_04_24
AT-05 (Amyloidosis) Study Travel Assistance
Referral Required
Phone: 203-701-7934 Fax: 203-266-1046
Resource(s): Attralus-AT-05_CTTL-flyer
Azitra NTH-1201 Study Travel Assistance
Referral Required
Phone: 203-763-1085 Fax: 203-702-4227
Resource(s): NTH-1201 (NethertonSyndrome) -Azitra-June2024
Barth Syndrome Travel Assistance Fund
Referral Required
Phone: 203-242-0497 Fax: 203-516-2398
Resource(s): Barth Syndrome Foundation Family Services Fund
Batten Disease Emergency Relief
Accepting Applications
Phone: 203-405-0585 Fax: 203-349-3836
Resource(s): BattenDisease-ERF
Apply Online
Chronic Granulomatous Disease (CGD) Copay Assistance
Temporarily Waitlisting
Phone: 855-201-5096 Fax: 203-486-8462
Resource(s): CGD-PAP, CGD-PAP-Spanish
Chronic Granulomatous Disease (CGD) Medical Assistance
Temporarily Waitlisting
Phone: 855-201-5096 Fax: 203-486-8462
Resource(s): CGD-PAP, CGD-PAP-Spanish
Chronic inflammatory demyelinating polyneuropathy (CIDP) Medical Assistance
Temporarily Waitlisting
Phone: 203-267-9005 Fax: 203-266-1002
Resource(s): CIDP-PremiumCopay&MedicalAssistance-Jan.2025 (4)
Chronic inflammatory demyelinating polyneuropathy (CIDP) Premium Copay Assistance
Temporarily Waitlisting
Phone: 203-267-9005 Fax: 203-266-1002
Resource(s): CIDP-PremiumCopay&MedicalAssistance-Jan.2025 (4)
DISC-1459 Erythropoietic Protoporphyria (EPP) Study Travel & Lodging Assistance
Referral Required
Phone: 203-263-9188 Fax: 203-621-3238
Guillain-Barre Emergency Relief Assistance
Accepting new applications for current year
Phone: 203-309-3896 Fax: 203-740-1862
Resource(s): PAP_EmergRelief_GBS-July2024
Apply Online
Hemophilia Emergency Relief
Temporarily Waitlisting
Phone: 203-514-7192 Fax: 475-204-3597
Resource(s): EmergRelief_Hemophilia (2), EmergRelief_Hemophilia-SPANISH (2)
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