RareCare®

NORD’s Patient Assistance Programs


Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Hypophosphatasia (HPP) Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 866-828-8902 Fax: 203-349-8446
Resource(s): PremiumCopay&MedicalAssistance -HPP-July2024
Apply Online
Hypophosphatasia (HPP) Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 866-828-8902 Fax: 203-349-8446
Resource(s): PremiumCopay&MedicalAssistance -HPP-July2024
Apply Online
IgA Nephropathy Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-309-3276 Fax: 475-206-0857
Resource(s): IgA Nephropathy (IgAN)_PremiumCopay&MedicalAssistJuly2024
Apply Online
IgA Nephropathy Premium Copay Assistance
Accepting new applications and re-enrollments for next year
Phone: 203-309-3276 Fax: 475-206-0857
Resource(s): IgA Nephropathy (IgAN)_PremiumCopay&MedicalAssistJuly2024
Apply Online
Immune Thrombocytopenia (ITP) Medical Assistance
Temporarily Waitlisting
Phone: 475-365-6267 Fax: 203-266-1033
Resource(s): ITP-PremCopay&Medical Assist-2026
Immune Thrombocytopenia (ITP) Premium Copay Assistance
Temporarily Waitlisting
Phone: 475-365-6267 Fax: 203-266-1033
Resource(s): ITP-PremCopay&Medical Assist-2026
Lambert-Eaton Myasthenic Syndrome (LEMS) Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-616-4308 Fax: 203-349-3198
Resource(s): LEMS-PremCopay&MedAssist-Jan2025
Apply Online
LEMS Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-616-4308 Fax: 203-349-3198
Resource(s): LEMS-PremCopay&Medical Assist-Jan. 2025
Apply Online
Lennox-Gastaut syndrome (LGS) Premium Copay Assist
Accepting new applications and re-enrollments for current year
Phone: 855-864-4028 Fax: 203-614-1713
Resource(s): LGS-PremCopay&Medical Assist March2026 (2)
Apply Online
Morquio A Emergency Relief
Accepting Applications
Phone: 844-675-2354 Fax: 203-349-3200
Apply Online
Morquio A Syndrome Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 844-675-2354 Fax: 203-349-3200
Resource(s): MorquioA_PremiumCopay&MedicalAssistanceJuly2024 (2)
Apply Online
Morquio A Syndrome Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 844-675-2354 Fax: 203-349-3200
Resource(s): MorquioA_PremiumCopay&MedicalAssistanceJuly2024 (2)
Apply Online
Mucopolysaccharidosis type VI (MPS VI) Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 877-798-8716 Fax: 203-349-3203
Resource(s): MPS-VI_PremiumCopay&MedicalAssistanceJuly2024 (1)
Apply Online
Mucopolysaccharidosis type VI (MPS VI) Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 877-798-8716 Fax: 203-349-3203
Resource(s): MPS-VI_PremiumCopay&MedicalAssistanceJuly2024
Apply Online
Multifocal Motor Neuropathy (MMN) Medical Assistance Program
Temporarily Waitlisting
Phone: 203-263-9484 Fax: 203-302-4695
Resource(s): PAP_Multifocal motor neuropathy (MMN)
Multifocal Motor Neuropathy (MMN) Premium Copay Program
Temporarily Waitlisting
Phone: 203-263-9484 Fax: 203-302-4695
Resource(s): PAP_Multifocal motor neuropathy (MMN)
Myasthenia Gravis Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 860-498-4307 Fax: 203-571-3167
Resource(s): MG-PremCopay&Medical Assist-Sept2024
Apply Online
Myasthenia Gravis Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 860-498-4307 Fax: 203-571-3167
Resource(s): MG-PremCopay&Medical Assist-Sept2024
Apply Online
Neurofibromatosis Type 1 (NF1) Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-263-9795 Fax: 203-405-3021
Resource(s): NF1-PremCopayMedicalAssist-2026
Apply Online
Neuromyelitis Optica Spectrum Disorder (NMOSD) Medical Assistance
Temporarily Waitlisting
Phone: 203-202-8833 Fax: 203-267-0550
Resource(s): NMOSD-PremCopay&Medical Assist-2025
Neuromyelitis Optica Spectrum Disorder (NMOSD) Premium Copay Assistance
Temporarily Waitlisting
Phone: 203-202-8833 Fax: 203-267-0550
Resource(s): PAP_PremCopay_NMOSD_Spanish, NMOSD-PremCopay&Medical Assist-2025
Organic Acidemia Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-285-8288 Fax: 203-702-4225
Resource(s): Organic Acidemia Assistance Program (7)
Apply Online
Organic Acidemia Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-285-8288 Fax: 203-702-4225
Resource(s): Organic Acidemia Assistance Program (7)
Apply Online
Paroxysmal Nocturnal Hemoglobinuria (PNH) Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-567-3814 Fax: 203-517-4297
Resource(s): PNH-PremCopay&Medical Assist-2025
Apply Online
Paroxysmal Nocturnal Hemoglobinuria (PNH) Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-567-3814 Fax: 203-517-4297
Resource(s): PNH-PremCopay&Medical Assist-2025
Apply Online
Periodic Paralysis Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 877-291-7756 Fax: 203-586-0138
Resource(s): PeriodicParalysis-PremCopay&Medical Assist-2025 (2)
Apply Online
Periodic Paralysis Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 877-291-7756 Fax: 203-586-0138
Resource(s): PeriodicParalysis-PremCopay&Medical Assist-2025 (2)
Apply Online
Phenylketonuria (PKU) Emergency Relief
Temporarily Waitlisting
Phone: 855-628-0646 Fax: 203-798-2964
Phenylketonuria (PKU) Medical Assistance
Temporarily Waitlisting
Phone: 855-628-0646 Fax: 203-798-2964
Resource(s): PKU_PremiumCopay&MedicalAssistance-2025 (9)
Phenylketonuria (PKU) Premium Copay Assistance
Temporarily Waitlisting
Phone: 855-628-0646 Fax: 203-798-2964
Resource(s): PKU_PremiumCopay&MedicalAssistance-2025 (9)
Progeria & Progeroid Laminopathies Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-763-4717 Fax: 475-557-5183
Resource(s): Progeria Assistance Program
Apply Online
Progeria & Progeroid Laminopathies Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 203-763-4717 Fax: 475-557-5183
Resource(s): Progeria Assistance Program
Apply Online
PTC 124 GD-016-DMD Travel & Lodging Assistance (Duchenne Muscular Dystrophy)
Closed
Phone: 866-647-9325 Fax: 203-674-9937
Rare Disease Education Support Travel & Lodging Assistance
Temporarily Waitlisting
Phone: 860-556-2208 Fax: 203-635-7486
Resource(s): PAP_EducationProg_2025
Rare Pediatric GI Medical Assistance
Temporarily Waitlisting
Phone: 203-896-7261 Fax: 203-635-2130
Resource(s): Medical Assist_RarePedGI
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