RareCare®

NORD’s Patient Assistance Programs


Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Rett Syndrome Emergency Relief Assistance
Temporarily Waitlisting
Phone: 203-544-2663 Fax: 475-206-0804
Resource(s): PAP_EmergRelief_Rett Syndrome (1)
Saol Pyruvate Dehydrogenase Deficiency Complex (PDCD) Travel & Lodging Assistance
Referral Required
Phone: 203-616-4324 Fax: 203-263-9928
Short Bowel Syndrome Medical Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-218-9877 Fax: 203-429-8717
Resource(s): SBS-PremiumCopay&MedAssist-March2025
Apply Online
Short Bowel Syndrome Premium Copay Assistance
Accepting new applications and re-enrollments for current year
Phone: 855-218-9877 Fax: 203-429-8717
Resource(s): SBS-PremiumCopayAssistance-August2024
Apply Online
Stiff Person Syndrome Research Foundation Travel and Lodging Assistance
Temporarily Waitlisting
Phone: 203-989-0049 Fax: 203-571-4493
Resource(s): Stiff Person Syndrome Educational Support T&L (1)
Undiagnosed Disease Medical Assistance
Referral Required
Phone: 844-858-0451 Fax: 203-798-2289
Resource(s): FAQ Undiagnosed Patient Assistance Program 4-2019
Undiagnosed Diseases Copay Assistance
Referral Required
Phone: 844-858-0451 Fax: 203-798-2289
Resource(s): FAQ Undiagnosed Patient Assistance Program 4-2019
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